Dec 07 2007 10:40 am

Surgery – Pilonidal Abscess Removal

Published by at 10:40 am under Life

For the past few months I have been battling a Pilonidal Abscess on my lower back near my tailbone. I did my research before going to the doctor and self-diagnosed myself with one, but knowing that I’m not a doctor myself I kept my mouth shut and let the smart ones tell me what they thought it was.

The first doctor I visited was a dermatologist and was familiar with cyst removal, as Jamie had gone to him to have a small cyst removed from under her scalp. They were hopeful that all I had was small cyst and that a simple in-office procedure with local anesthetic would do the trick. The procedure went relatively well with the only problems being insufficient anesthetic due to inflammation. Feeling them cut me and the cauterization in areas was quite unpleasant. But, I got through it and was back at work the following day.

Two days later the cyst had returned, and this time with a vengeance. I felt pressure like I hadn’t felt before and later that night, it burst through the skin. What a mess. So, I went back to the dermatologist and he speculated that I had a Pilonidal. He referred me to a general surgeon to discuss my options.

The surgeon took a look at it and agreed with the dermatologist’s assessment. He was pretty upset that I had been on antibiotics for so long (3 cycles) and strongly suggested that I finish my current cycle and not refill as the bottle indicated. I took his advice because of articles in the news about bad staph infections going around. He scheduled my surgery for yesterday, Dec. 6, 2007.

I arrived at the hospital at 8:30am as instructed, and was taken to a prep room relatively quickly. I believe I spent close to two hours in there before being taken to a surgical holding area. My stay in holding was the most lengthy. My surgeon was late, which seems to be a pattern with him, and I don’t think I actually got in to the operating room until about 2:00pm. The time spent in the holding area was long, but surprisingly I wasn’t upset like I normally would be. Patience is not one of my virtues. I was all hopped up on drugs too, so it’s mostly a blur now. But I do remember being quite lucid during my time there.

The surgery, I have to say, was great. If you’re ever told you’ll be receiving something called “twilight anesthesia”, rejoice. It’s pretty much just like general anesthesia, except you’re not as deeply sedated. No breathing tubes required or anything like that, but you’re totally under. When I woke up, I was fully aware. None of the “sleep the day away” leftovers like with general anesthesia.

The doctor said my abscess was “large and complex”. I asked to see it but it had already been disposed of. They did hold up fingers though and showed me an approximate size. It appeared to be like six or seven inches long. Yikes. Kind of explains the odd feeling that I’m experiencing of having something missing back there.

I came home with a drain attached to me, and a bandage the size of a diaper. Taking that out was a treat, and I’d have probably cried like a baby if it wasn’t for Jamie. Jamie, incidentally, has been amazing for me over these past few months. Changing bandages, taking care of me when I’m down, and pulling that tube out of my back this morning. I am so grateful and consider myself incredibly lucky to be marrying this fine lady.

So, here’s to hoping I’m finally done with this business. This abscess has sucked and I’ll be very glad to never deal with it again. To those dealing with one, I offer my sympathies.

201 responses so far

201 Responses to “Surgery – Pilonidal Abscess Removal”

  1. Jamieon 08 Dec 2007 at 7:56 pm

    Damn right I’m a fine lady!! :D

    I can’t wait for this to be all over for you. I know you have been suffering for these last few months. :(

  2. Peteon 15 Dec 2007 at 10:06 am

    I’m sorry you’re in pain now buddy, but I’m sure it’ll all be worth it when it heals :)

  3. Quitaon 04 Feb 2008 at 12:16 am

    i had pilonidal surgery about 2 weeks ago. How long am I going to drain? The drain was taken out a week ago. I am also still in a little pain. Is this normal?

  4. Steveon 04 Feb 2008 at 10:43 am

    How was your wound closed after removal? Mine was completely enclosed with a drain coming out above the incision and I removed it the same day as the surgery. Drainage for me lasted a few days (maybe a week) after taking the drain out. If it continues, I’d recommend asking your surgeon.

    Pain or discomfort for several weeks is normal from what I understand. I experienced pain for probably 1 to 2 weeks, and then it eased to only hurting when I sat on it improperly. I highly recommend buying a coccyx cussion. It has spared me considerable discomfort over the past several weeks.

    Here’s a good site for what to expect when recovering from and living with a pilonidal abscess:

  5. Quitaon 04 Feb 2008 at 10:46 pm

    Also, I think I was cut twice. I have a closed stitch wound right at the top of my tailbone but I also have sort of an open wound on my left cheek which is where he literally snatched the drain out. Does this sound familiar?

  6. Steveon 05 Feb 2008 at 10:48 am

    It sounds very familiar. My drain was in higher than yours, above my right cheek. But it was completely separate from the surgical incision itself. Mine came out same day though, and was done at home.

  7. Mariaon 15 Jul 2008 at 7:35 am

    hi I have search around, and this is the only one that attract my attention. I just had surgery due to an abscess removal also. I was just wondering if anyone had one on their anal going straight to the rectum. because i just got over one surgery and i was told that i need another one . this one is going inside my rectum and i am pretty scared about this second sugery. I had to be in the showers everytime i use the potty the protect myself from having an infection. and believe me it has not been easy. has anyone had something like this and can you share it with me. thank you and god bless everyone.

  8. Lack of Posting | Steve Cullenon 10 Sep 2008 at 11:35 am

    [...] March. I had what I consider to be a serious health scare at that time (completely unrelated to my Pilonidal procedure) and decided a lifestyle change was needed immediately. My weight had reached a point that was [...]

  9. rachel jobon 06 Nov 2008 at 5:32 pm

    has your’s ever returned ? im about to go under the fourth time now

  10. Steveon 19 Nov 2008 at 12:03 pm

    Sorry for the slow response Rachel.

    Fortunately, mine has not returned at this point. It’s almost a year since the surgery though. How long are you going between procedures? My surgeon told me that they can reoccur, but he took a lot of surrounding tissue out from the area around the abscess. Which, he said, should help minimize the chance of any recurrence.

    I have done as much as I can do, I think, to help keep my chances of staying free of one as high as possible. I keep the area very clean, I’ve lost a great deal of weight, and improved my diet and exercise tremendously. Being overweight is a huge factor with these things I’ve been told.

    Have you sought out a different surgeon to perform the procedure in case some of the abscess is being left behind when you go in? If any is left behind, it will come right back.

  11. Steveon 09 Jul 2009 at 3:48 pm

    - UPDATE -

    I have to say, my surgeon wasn’t messing around when he said that the abscess was pretty big and he took out a lot of surrounding tissue. I hit my tailbone on everything now. LOL Just laying on the bench at the gym I can feel myself teetering on it. Craziness!

    Scary, and sometimes painful… But nonetheless, funny. :)

  12. sarahon 17 Aug 2009 at 8:01 pm

    Im in the waiting room right now and I was wondering, when they don’t close it up is the big dent in your backside,?
    Haha im that scared I am going to burst out laughing in this quiet waiting room full of old people hahahahaa.

  13. Steveon 17 Aug 2009 at 8:45 pm

    My surgical site was closed and not left open for the healing process. Although I have heard of some surgeons leaving it open and packing the wound for a period of time.

    And yes, I’m missing quite a bit of tissue now since mine was rather big. lol But there isn’t a “dent.” haha

    Good luck Sarah! You’ll be fine. :)

  14. Johnon 19 Aug 2009 at 8:41 pm

    The term “simple procedure” merely sound like a joke to me, coz I had mine removed without local anesthetic, painful as heck. 5 min job but a tremendous torture that was. Open wound healing procedure is as painful too, since the wound tend to close on you pretty quick, so it has to be re-opened to fit in a special type of dressing which is sharper to keep the wound from closing. Just weeks and weeks of continuous pain. Hope this comes to an end soon. :(

  15. Cherylon 07 Sep 2009 at 7:34 pm

    I have been living with this pilonidal abscess for approximately 32 years. I think I was around 17-18 when I first noticed it and I am now 49. I haven’t had surgery yet but I am going to make an appointment soon to have it looked at. I have been reading everybodies comments and stories on this sight and many others. Can I say SCARY!!! OMG!! It will probably be way embarrassing but I definately have to take care of it like right now! It is so painful and uncomfortable especially when it flares up. I just hope it hasn’t tunnelled so deep from letting it go so long. Thank you for this website and for sharing everyone. I will write back after I have surgery and tell you all about it.

  16. Steveon 08 Sep 2009 at 10:35 pm

    Good luck Cheryl! You’ll feel completely different once it’s done after having it for so long. I can’t imagine living with it as long as you have. You’re definitely a trooper!

    Definitely post again after you’re done and let us know how you’re feeling.

  17. Kyleon 16 Dec 2009 at 7:42 pm

    Hi guys,
    Great discussion! I have had mine for about 5 years now, not infected since but kept ignoring it all this time until a few days ago I realized that I actually was bleeding from my abcses so my wife convinced me to show it to my fam doctor. Went to my doc and that’s when I realized what it actually is. My doc said that it’s nothing serious but he smirked and said “IT’S A PAIN IN THE ASS” lol. Saw a surgeon the other day, he told me my options and that surgery should be the last resort. He suggested shaving the area every two weeks, washing it everyday, keep it clean and told me that if is infected, DON’T go to the doctor and get anti-biotics, instead dip into the hot tub to get rid of the bacteria. CHERYL: I think you have had yours for too long, my fam doc told me that depending how long you have it, it can canal thru your spine, not trying to scare you but you should definitely get it checked and get rid of it. As far as I’m concerned, I’m going for the surgery, I can deal with as long as it takes to heal, but I WANT THIS THING OUT OF ME. My only concern is and hope someone can help, HOW IS IT WHEN YOU USE THE WASHROOM, TAKE BATH ETC??? specially when that wound is left wide open??
    Appreciate your inputs….


  18. MRS.Aon 18 Dec 2009 at 9:23 am

    To all of you that are going through this or have gone through the pain…I feel you all…About 2 yrs ago I was diagnosed with a Pilonidal cysts. I was hospitalized for a week. At home I had to pack the wound for about 3 weeks (not a pleasant feeling) was very painful. . I still got flare ups after this, but did sit baths etc..(2 yrs later)This year I had a flare up that ended up in the E.R (On Thanksgiving day) was cut to drain the cyst, put on antibiotics again….I saw a surgeon yesterday and was told that the best thing to do is get the surgery. She did say that there are chances of wound care (if stitches open)..I’m nervous but I do not want to live with this pain and so much on antibiotics can make you in the long run have low immunities which can lead to other illness. Can any one give me advice on the surgery? Did anyone have the surgery and cysts came back? Thank you for your time..

  19. bee deeon 09 Mar 2010 at 3:54 am

    Hi everyone, found u guys while Googlin on the crackberry. N e wayz, I am writing this on the floor face down. I am 26 years old,and going through my 2nd abcess cyst on the tailbone!!!! In 2 years!!! What’s creepy is,5 years ago when I was working ,I smelled something bad but didn’t know if it was me. I was so baked I didn’t realize what it was!!! As the time passed I put 2 n 2 together, the weird brown stain in my boxers,and all day driving/pain in my tailbone. Then,after 3 years of noticing a very slight discharge once an a while,I had a serious Bruce Lee Death punch hanging off the top of my crack.I had to wait 3 days to see a prick of a quack-whom u can tell their is a shortage of good doctors because this guy was a dick-he gave me 2 shots (said it would be cold)it was but him scoopin my BLF and stabbing like a pirate and yelled F;##!!! He gives me some Percocet,antibio, and says come back for surgery. I heal up and didn’t go back to pay 1600$ on a 30 minet procedure,so like a true hard head I go on,and because now I’m unemployed hoping my family can help. WELL,a year and 2 months later, which is now, I AM Back at the doctors getting ANOTHER Abcess sliced!!! WTF so the same prick doctor,who now has 30 people in a 20 man waiting room,decides to slice me again. Thanks to Dads insurance, but I could have used a scalpel too.?.? So really,I just paid him for darvocet and anti this time. Dr. says the same thing, “surgery is the way to make it stop” and I am worried!!!!But if its worth not having this pain,I mean Fuc### PAINNNN, I was on the floor,couldn’t walk,even stand straight, eat,piss,anything for 5 days until the prick cuts it??? This shit has to be prevented,so anybody who reads this Help,and if you are suffering, pray to Jesus Christ and the Lord God

  20. Abbyon 23 Mar 2010 at 1:30 am

    I love that I came across this site, however, I still have a question. About 2 1/2 years ago I got my first cyst and boy did it hurt! I got it lanced open and had to pack it, I was not only lucky enough to have my mom do it but also my boss’ wife is a nurse and he offered up her.. what a nice guy huh? The packing i think is the worse part i find it more painful that the rest of everything. I was clear for the 2 1/2 years with a little soreness here and there but nothing major until i started to get another bump. I had it lanced open and this time my mother says theres no option but surgery which i’m excited and scared for at same time. Excited because I want to be rid of this problem but scared because ive never had any time of surgery or anything before. My question is how long is the usual hospital stay? how is the pain after surgery? I realize my situation is a little different because I also had a cyst in my belly button that were going to have removed but I was just curious how long i’ll be in the hospital. Thank you for all your help!

  21. Steveon 27 Mar 2010 at 10:16 am

    For bee dee and Abby, and anyone else wondering if there are options besides surgery on a pilonidal abscess…

    Unfortunately, if you indeed have a pilonidal, the only option is surgery to completely remove it. The abscess is a sac, and draining it only provides temporary relief until it fills back up again. The lump at the surface of the skin is only the tip of the iceberg so to speak. I imagine it like a volcano… The big lump of lava is underground while the mound at the top is just the exit point. To remove the pilonidal completely, the entire sac and a small portion of tissue surrounding it must be removed.

    Fortunately though a good surgeon can take care of the problem relatively easily. My surgery took a few hours and I was in and out in the same day. I had to make the same choice… Keep getting it drained, or get it cut out. I went with surgery and my surgeon said it was one of the bigger and more invasive ones he has come across. So don’t worry… You’ll be fine. :)

  22. Maxon 02 Apr 2010 at 9:44 pm

    Hello everybody,

    i stumbled across this website and read all the comments. so i have a question I am 17 years old and just went to the hospital today to (im not even sure) drain i suppose my annoying pilonidal abscess. all the doctor did was squeeze out all the puss from the abscess. i still feel a little soreness but its hell of a lot better than barely walking and sitting, i couldnt even sleep.. i started to notice it hurting when i sat down a week or 2 ago… now heres my question im assuming that what i went threw today was a simple drainage. and that it might come back again. but if you go through surgery it will be completely removed and i will never EVER get it again? iver read that its the only way to get rid of it so im hoping that it would never come back. but some people here said they had it done 2 or 3 times. and for anyone who went through the surgery, how was it? and how long did it take?was it painful? please let me know as soon as you can.

  23. Melodieon 14 Apr 2010 at 8:28 am

    Wow. I never thought I’d find so many people who have to make (or have already made) the same decision I’m faced with today… I have been living with this embarrassing condition for about 5 years, and i would not even wish it on my worst enemy. thanx for all the information on the subject, I’m now going to phone my GP and schedule an appointment with a surgeon and take the leap…

  24. Koryon 27 Apr 2010 at 2:20 pm

    Ok so I have had my cyst for 11 years. I just had a flare up and went to the dotor and got the thing lanched and now he wanst me to go to the surgeon. I have a couple questions for those who have had surgery…was it outpaient or did you have to stay? If you had to stay how long? How long are you off work? I am so scared it is not even funny. Just sitting her thinking about it I want to cry. Sorry

  25. Jeremyon 27 May 2010 at 6:43 pm

    awesome thread i must say! I do however wish i was still ignorant of pilonidal cysts, but oh well…last week I fractured my tailbone(lower saccron) and three days later had an emergency draining of a pilonidal cyst 3″ long and 2.5″ deep running down my crack…am now on my third round of packing, with my fourth round tomorrow and a consult with the colorectal surgeon…for those of you who are past the surgeon, are there any qualifications or specific questions to ask them to make a better decision? i figure I can only live off perky’s and vicodin for soo long…lol…well any help you guys could give would be awesome!!!!

  26. Danielon 05 Jun 2010 at 8:11 pm

    Hi Steve (and others),

    I recently whacked my tailbone and somehow triggered an inflamed pilonidal <cyst/abscess/whatnot). Apparently it isn't infected (although on antiB's in case), but it's persisted for about a month. It only hurts when I sit down quickly or when I bend over, but I'm worried about its growth. All that said…

    Are there any surgeons recommended in the Bay Area (pref Oak/Berkeley/SF) who really know their stuff in this regard. I've seen too many scary things on the web and on lit reviews (i.e. Nature Clinical articles on how no one really knows the best way to treat this, even now), so I'd really like to find a doctor who specializes in this.

    To everyone who still has this/has had the surgery/lancing, etc.–good luck!

  27. Irishon 08 Jun 2010 at 5:30 pm

    I too wish I didn’t know anything about this subject! lol
    Last year I had an open wound op (pretty small but apparently lots in there!) and went through the packing thing. I hear it does work for some people but didn’t for me. It seemed to heal up for about a month but then opened up again.
    Jeremy, I can only say go with the packing and hope that it works for you. Best things to do are to make sure you shower after every time you go to the toilet (don’t get lazy when you think it’s just about healed) and be sure that you keep the open wound covered while you’re up and around your normal business but also give it some air for a while each day (make sure not to expose it closely to fabrics etc).

    I’d also give a warning about particular wound dressings – for ages i was using a dressing called allevyn gentle borders but these created quite a warm environment and I had 3 infections while using these (despite the wound constantly being covered). i then switched to using a simple melolin dressing with a small wound dressing underneath – i’ve had no infections since.

    Despite this, my problem never cleared up and i suspect the original drainage was simply not deep enough. I got referred to a very experienced colorectal surgeon and without a hesitation when he seen it, he said i should go for the flap technique and have more invasive surgery and close it up properly.

    So i’ll be in for that in just under 2 weeks. When i told my grandfather (he suffered with 5 operations for it), he told me to go for it and that this surgeon knew what he was talking about. My grandfather had 5 smaller open wound surgeries before he was offered what i was offered and it worked for him, so i’m hoping it will work for me too!

  28. Sierra Boutteon 09 Jun 2010 at 12:52 am

    I have the surgery next Monday and tge surgeon told me that it will have to be packed and heal from the inside out but packing hurts. Did anyone else have to go through this because he refuses to just remove the cyst drain the fluid and them stitch me up. how long are u on bed rest? Can u walk well or move properly? I’m extremely nervous and scared and the only reason I’m having the surgery is because I have been suffering with this n my mom is tired of paying hospital n doctor bills for drainage!!!!!! Can anyone please give me good advice that will help make me realize exactly what’s going to be taking place after all this is over?

  29. Irishon 15 Jun 2010 at 4:39 pm

    Hi Sierra,
    Yes I had the packing first time round. Sure, the packing itself isn’t pleasant but don’t worry too much, it is usually done very quickly. The nurse I had always told me to take my high-strength pain killers about 40mins to an hour before her visit and this really reduced the pain! I also used to just grit my teeth while they were doing it and it does get less painful every day so i really wouldn’t worry about it.

    I think the method you are having is the best first choice for surgery, if it heals up ok as it does for many people, you’ll probably not even have a scar.

    The only other advice i would give is to not go back to work too soon, make sure it’s fully healed, i was stupid and went back too soon. I went back about 2 1/2 weeks but really should have taken off until it was healed properly – maybe 3 1/2 weeks or so?

    Hope that helps, good luck with the op! I’m in on the same day having a closed op x

  30. Irishon 15 Jun 2010 at 4:41 pm

    Oh and Sierra, don’t worry too much after the op, you’ll be able to walk slowly at first round the house etc, will probably take a week until you can walk decent distances, so take it easy x

  31. Gregon 21 Jun 2010 at 10:19 pm

    Great find and thanks to everyone for the great insight and information. I had my procedure done today and the surgeon used the lateral incision (Bascom Technique) which was approx. 3 inches. He scrubed the sac and left open to heal from the inside out. He also picked the pits. I feel fine today and really having no pain. Has anyone had this procedure done on them and what can I expect regarding healing time? Also, how many times a day do you change the packing and is it painful? When might I expect to resume my running? Thanks

  32. Michelleon 07 Jul 2010 at 11:59 am

    My best friend has been dealing with this for 5 years. The first time he went in to the ER at Harborview in Seattle…they gave him a lotion and sent him home.

    I finally forced him to go to the ER at Swedish (again in Seattle) … like last June. We then got referral to colo-rectal specialist (and I felt bad but couldn’t help it -I cracked up when I saw the office sign).

    This specialist sliced him open in front of me, without warning and liquid poured and poured out. We were told to just let it drain, and this is the solution. A year later, my friend still has an open hole that never heals…it will scab up for a few days and then fluid builds up and has to be released.

    Is this normal for a doctor to cut you open and leave you with an open wound, and say live with it?

    We are going to the same speciality clinic tomorrow, but different doctor…this time a doctor from the hall of fame.

    Hopnig this finally gets resolved, but worried that we’ll be told again – to just live with it and it will continuously drain.

    The poor guy wears a band aid every day…when it gets to the point of you might as well buy stock in band aids…ya kinda have a problem.

  33. Anaon 11 Jul 2010 at 4:27 pm

    I just had mine drained for the second time this week and i have packing in the opening, the doctor told me to take a bath with epson salts and pull it out myself, so my husband wanted to do it and i told him it would be ok, I am really scared that is going to hurt would you guys know if it hurts that bad? or is there something that i could do to to relief the pain??

  34. Meshaon 15 Jul 2010 at 12:11 pm

    Wow i thought I was the only one going through this horrible issue. I have a cyst right below my tailbone. I went to emergency and they so called numbed me and sliced me open with a scapel and i felt every last bit of it. i was literally crying. They packed it with some special packing and sent me on my way with some antibiotics. that was the 4th of july weekend. now after getting it packed 3 times which keeps coming out, i have to go in again and see why it has a small odor, i just finished all my antibiotics, im so scared of what the dr. might say, and it hurts to get it packed. to make matters worse i just had surgery on both my feet and am trying to let them heal and now this…

  35. Lauraon 07 Sep 2010 at 4:10 pm

    hello, everyone. I was diagnose with this about three years ago. At first they tend to come and go like a year apart, now they are coming back like every month. Went to the doctors and he told me that I have 3 cyst and surgery will be needed. I took a look at it and found three small pin holes as well. I hope that he sees that to and hopefully removes it. It is going to be a left open. I am scheduled for Sept 17 2010. Ihope everything goea well. Any advise on what to expect after surgery. Any suggestions will help. Thanks

  36. Steveon 17 Sep 2010 at 10:59 am

    Good luck Laura! As mentioned in earlier posts, expect some pain. It’s nothing too bad or unmanageable though. Try to get plenty of rest and take the time off of work that your surgeon tells you to. You’ll pull through fine. :)

  37. Mommy_Triciaon 07 Oct 2010 at 3:47 pm

    Oh my goodness!!! After seeing this website I’m relieved but, honestly, a little more scared now :( My problems with this started in june of 2006. I had just had my Daughter on the 2nd and noticed that my butt was hurting. Well…I just had a baby, so I ignored it. Soon after, I believe it was the 22nd, I had a fever of 103!! Mind you, at this point, I still had a Cesarian section that hadn’t closed quite yet. So I was in worlds of pain as is ,and then this!! My grandma decided hemroid cream would be a good option, not knowing what it was. I had two golf ball sized buldges on either side of my tailbone. OH MY EFFING GOD!!!!! Do not put hemroid cream on these things!!! WARNING! It blistered immediately! I was in the shower sobbing. So, we fired up the car and rushed to the emergency room. I waited (with a fever of 103!!) for 4 hours! They finally got me back there and drained 1 1/2 cups of fluid out of me. He said it was, infact, a pilonidal. But he simply cut and drained it and said I’d be fine. He never mentioned anything about possible surgery or anything. He just said that it happens all the time and he fixed it. So here I sit october 7th 2010 with two buldges on either side of my tailbone throbbing like hellfire!! I have a full time job right now with people just waiting to replace me if I leave. So I’m slightly BESIDE MYSELF. I’m a single mom, I can’t afford to lose my job, but I also can’t afford to Be in this horrific burning pain all the time and work. I saw that it looks like 2-6 weeks downtime after?? Is that a definate or an estimate?? If I loswe this job, I lose everything and mt Daughter and I will have nowhere to go :( I just wish the decision was easier. Ahhhh! Glad I’m not the only one to experience this. Almost noone knows what I’m talking about when I mention these things.
    Another issue: What are we talking about as far as scarring??? I must say, I have a pretty nice bumm and would hate to ruin it! haha. I work out religiously and am proud of my post-baby body. Will this deform my buttocks?

  38. Steveon 10 Oct 2010 at 1:50 am

    Mommy_Tricia… I do not recall how much time I missed from work. I don’t think it was too long. Possibly a few days. My surgery was on a Thursday, and if memory serves me correctly I was out Friday and possibly the following Monday. There was really only any noticeable pain for a week or two tops. Since we are talking about job security, you should talk to a surgeon who can properly diagnose your pilonidal, discuss his/her methods for removal, and give you a reasonable approximation of what to expect. What happened for me or others may not be the same for you.

    As for scarring: I did get a pretty decent scar from my procedure. It’s about 3 or 4 inches long and runs along my tailbone extending out of my butt crack. (Pardon the blunt description. lol) But again, your surgeon may have other methods and might be able to reduce scarring. As for me, the scar was a good trade compared to the pain and discomfort I was feeling.

  39. Raymondon 18 Dec 2010 at 6:26 pm

    Am in agony yet again with one……..had two ops this my fifth time having it cant take any more time off work with this……….why does it keep coming back……..?

  40. Laurieon 20 Dec 2010 at 12:19 am

    My son discovered his Pilonidal in August just before the college semester began. The GP confirmed the diagnosis and sent us to a rectal surgeon. He did not drain it as we had hoped. Instead he scheduled my son for surgery at my son’s first convenient date due to school. Within two weeks, he came home for the surgery on a Friday morning. It all went very easily. My son never even had to take any of the Vicadin that was prescibed. He was back sitting in classes on Monday. He said he did have to learn how to sit in each classroom so the area would not hurt, but he was fine. The surgeon had stitched the wound and I took my son back two weeks later during Fall Break in October to have them removed.

    All looked fine until Thanksgiving when my son said the area had started draining again. Made another appt for Dec. 14th after his exams and at the start of his Christmas break. Surgeon set us for another surgery for tomorrow morning, not for another cyst, but to open him up again,this time instead of using stitches since they didn’t help the healing process as well, he would pack the wound. We have to go back Tuesday for him to put in a drainage pump. (It will not be delivered from the health care company until late tomorrow afternoon, so he won’t have it for the surgery). Then a home health care nurse will come in every other day to change the packing, or whatever is to be done. And the surgeon’s nurse did suggest that he take a painkiller before he goes in for the packing appointment on Tuesday.

    Since he is home from college for six weeks, the doctor said that it should be nicely healed by the time my son has to return to school in mid-January. I hope so! The doctor also mentioned the possibility of having a plastic surgeon come in if it looks necessary. This part is all foreign to me. We feel very comfortable with the surgery (it went SO well in September), but the packing and the pump and the plastic surgeon kind of worry me.

    Luckily, my son has only had to deal with all of this for 6 months. I can’t imagine someone living with the pain, the drainage, the frequent lancing…we went straight for the surgery because that is what was recommended by both the GP and the surgeon. Glad we did!!

  41. Wendy Wardon 04 Jan 2011 at 4:24 pm

    I just underwent this uncomfortable ordeal in the ER room at my local hospital back in October. Mine is located on my left butt check, down towards the bottom to the left of my crack. The doctor lanced my ‘pimple’ and that hurt so bad; i thought i would die. Felt like i was being burned by a poker. He said he couldn’t get it to come out but then i noticed over time it was draining; pus and yechy stuff. He gave me antibiotics and sent me home. No packing, no instructions. it never cleared up or healed up and is now coming back again; quiet painful. I also notice one starting to develop on the other side of my butt cheek – same location – just not as painful.

    is surgery my only option – i just want it to go away! Also, does anyone know what causes these? i’m curious. advice????


  42. Rickyon 20 Mar 2011 at 4:30 pm

    I had a pilonidal cyst removed about a year ago it was infected and busted on me during one of my college class’s not fun =/ IT was painful as hell and it was may of last year…. Well i still am draining and bleeding it depends some days its nothing and other days its a lot it happens more so when i sit for long periods of times i have tried talking to my surgen about it he says normal and not to come back anymore i am wondering if he is just bs me around and trying to get rid of me.

  43. Elizabethon 04 Apr 2011 at 10:37 pm

    Im having my pilonidal removed on Thursday and I am a nervous wreck!! I have been debating on cancelling my appt. I just want these things to quit interrupting my life and I know this will help right? Some one please help@

  44. RichieRichon 08 Apr 2011 at 4:13 am

    Hey elizabeth and others since we are giving testimonials, I’ve had my cyst on my tailbone for 12 yrs before making the decision for surgery. Like everyone else I had to get it lanced but mine never closed up again. It had just drained for the last 12 yrs. Very embarrasing for a male, but maxipads are awesome! Anyhow, I made the decision to get the surgery done on march 25, had twighlight anesthesia and surgery nearly an hour. Woke up in less pain than I had been in for 12 yrs. Stayed at the hospital for bout an hour after. Got home,pills, sleep! Dr told my wife to remove the packing and do not pack it again. I have a 3″ hole at the top of my tailbone and about 4″ stitched slit going down and stops roughly a half inch from my anus. The almost whole 2 weeks I’ve had this surgery I’ve had little to no pain. Healed up quick first week and stitches have almost desolved into my 2nd week. Now my thoughts turn to this gaping 3″ hole that is not to be packed but to heal from inside out. Don’t have a sitz tub but epsom salt baths are quite nice!, minus the awkward positioning to “empty the waterbucket” in the small of my back. Everything seems to be right on track, I am going back to work after 2 weeks hoping this will continue to heal as It has. Ill try to keep posting on complete healing times. Thank you for this opportunity and remember guys, we are not alone in this though we feel freakish, or not normal we should take note that we have each other.

  45. Natashaon 05 May 2011 at 9:37 am

    Hello All, I have had these cysts on and off for ten years now. Initially had one in my first year of uni and have had a massive 14 operations since then. I’m getting pretty sick of it all to be honest. I’ve tried everything recomended by my GP, quit smoking, lost 4 stone etc but they still keep coming back. I’m going to see a specialist tomorrow to try get it sorted once and for all. I still have an open wound on my back from surgery 2 weeks ago, I’m packing and changing the dressings twice daily and having salt and tea tree baths. Had to come back to work though because i can’t afford any more time off!! Not that I’m glad that anyone has these awful things but its nice to know I’m not the only one!! I’ll post what ever the specialist tells me tomorrow FYI, you never know, it might help someone alse out as well! All i’m bothered about today is the pain in my hips from sitting on one side of my bum or the other! All my love to anyone suffering at the moment I know how horrid it feels.

    Natasha x

  46. meghanon 21 Jun 2011 at 4:39 pm

    Hey all. I’m actually in the hospital waiting to be wheeled in for the procedure now. I’ve been here over 4 hours :/. I’m a tad scared though. I’m only 16, and I’m 16 weeks pregnant. I seriously seriously hope this doesn’t harm my baby. Any one been through this procedure while pregnant?

  47. Raeon 30 Jun 2011 at 1:02 am

    I’m 18
    A week ago I had what I thought was a pimple growing on the top Of my butt crack.. It began to grow and hurt more over the next few days.. I finally put embarrassment aside and told me mom. A few nights later I could not sit or lay comfortably so my mom took me to the ER.. Can I just say lancing was the most pain I’ve ever been through.. And the bedside manor was terrible. They packed it and we made an appt for wound care.. Well wound care was today when I found out it’s a pilonidal cyst a d I’m going to need surgery.. I was wondering how long does the surgery last? Are you asleep? I’m glad to see I’m not alone!!

  48. kumaron 12 Jul 2011 at 4:56 am

    ohh godd…we all hav the sufferings…but its the painful thing ever had…i had the sergery 3 weeks the dresser says its healing…i came back to home frm the hospital after 4 days of the sergery n the drain was still there…but here in home aftr 1 day i got secondary bleeding frm the wound….my dad freaked out…drove me back to hospital…i was admitted again for 6 days ..they took off my drain immidiately after admission..n gave enormous iv injections to heal…my pain was gone after 2 days..n i was able sit after 2 wks
    now im back home…continuing my drsng with help frm my mother n xprt…i m in engg studys..hampering a lot..cauz my university is far away frm my home…n i live there in a paying guest home…no one there to help in drsng…anyone plz tell howmuch will it take:((

  49. Cathyon 27 Jul 2011 at 6:34 am

    I am scared out of my mind. I have had this “Thing”, (ALIEN) If you will, since I was 10 years old, falling down the stairs with a bowl of apples. Brilliant. Every 5 years or so, it would flare up again, but would Always close. NOW…It is continuously draining or bleeding from 3 holes one on the left, one in the middle, and one on the lower right. I can’t take much more of it. A Round of Keflex did wonders for my pain. I could sit, walk, and get in and out of cars for 10 days. It was the most beautiful feeling in the world. I am NOT Looking forward to surgery, where all I need to do is make these 3 holes even Bigger. I can’t deal with the packing of it, as I have already experienced that in my left groin! I have a horrible condition called Hidradenitis Supperativa. Big fancy word for wounds that never heal. This is one of them. The rest are located in my inner and outer labia, and left groin. It’s been 5 years and two surgeries on my groin, and it does not close. I fear the same will happen with my Pilondial Cyst and I will be left with this big gaping hole….don’t know what to do. Seeing the surgeon today…scared out of my wits. Sometimes when I am constipated this this bleeds…and it hurts. I don’t know how far it has gone, and I’m afraid to find out…..God Help Me.

  50. Steveon 27 Jul 2011 at 9:11 am

    Good luck, Cathy! I have to think if your surgeon is familiar with your condition that he will have a plan for your recovery. Mine was a closed healing (stitched shut) as opposed to an open healing (gauze packing). I’m sure your surgeon will know what’s best for you. More importantly if his/her plan doesn’t feel right to you, get a 2nd/3rd/etc opinion until you feel good about what’s happening.

    I’m sure I only felt a fraction of the pain you have with the abscess, but I can tell you that the surgery for me was well worth it. I hope a similar outcome is possible for you. For everyone posting as well.

  51. Cathyon 27 Jul 2011 at 1:16 pm

    Thanks! :))))) You made me feel better when you said your wound was stitched closed. Are you doing OK Now? I hate seeing new doctors…I really love this one, I mean, he can stand there and listen to you for hours, and answer all your questions…but the thought of surgery on such a sensitive area bugs me. Thank God yours was well worth it, I hope mine will be too. Take Care!!!

  52. Steveon 27 Jul 2011 at 6:27 pm

    Thankfully (knock on wood) I haven’t had an issue since the surgery. Hard to believe it’s been over 3 years now. I have a nasty scar and I’m almost obsessive about keeping the area clean. lol But I’ll trade a scar for that pain being gone any day of the week. :)

    Best of luck! I hope you got good news from your surgeon.

  53. Cathyon 27 Jul 2011 at 6:55 pm

    UGH…Steve. Just came back from the surgeon. He said it is way bigger than he originally thought. He said closing it won’t even help hold it together, they have to do some kind of “Z-Flap” and I have to stay in the hospital for 2 days because it’s “Painful”. For now he is putting me on 500 mg. of Amoxicillan for a month, once a day..because I am going on Vacation. I also have Silver Sulfadiazine Cream to pack into the holes…..I hope to hell something good happens in that time frame. Wish Me Luck….Thanks for chatting with me. :) It’s nice to know I’m not alone.

  54. Steveon 27 Jul 2011 at 7:02 pm

    Sounds like a big one alright. I’d never heard of a z flap before. I’m definitely interested to see what you decide to do and hope you’ll keep me updated. Best of luck to you! Enjoy your vacation and I hope the pain meds help get you through the next stretch.

  55. Cathyon 27 Jul 2011 at 8:14 pm

    Thanks! I will keep you updated on how I’m doing! So glad I found this place! :) Goodnight!

  56. Amberon 03 Oct 2011 at 2:24 am

    I am having surgery for my pilonidal on October 21st. I am having a VAC dressing. Has anyone heard of this?? The pain is unbearable and it is flaring up every month. Finally think it’s gone and it rears (ha hah aha) it’s ugly head once again. I don’t know what to expect and have an appointment with the surgeon tomorrow… wish me luck.
    Such a good feeling to know that we are not suffering through this alone. I sending healing vibes to each of you :) Stay positive!

  57. Cathyon 13 Oct 2011 at 1:15 pm

    Hi Amber. yes, my doctor talked about that, apparently it attaches to your wound, and you have to wear it taped somewhere on your body. I told him I didn’t want to do it this way, because, honestly. How the hell do you sit on the toilet! Among other things! I know what you mean about the pain. I am having mine done in November. Mine is going to be partially closed and partially open…GOOD LUCK with your appointment, type back and let us know what happened.

  58. Cathyon 13 Oct 2011 at 1:29 pm

    About the sitz baths….I tried to sit in one when I had a gaping hole in my Groin from Having Hidradenitis….I almost Hit the ceiling! How can I possibly put my BUTT in a sitz bath without hitting my head on the ceiling?! Water in an open wound??! I also have open wounds from HS in my inner labia….The best I can do is showers…they don’t hurt like a sitz bath…how do you manage?!

  59. wendyon 15 Oct 2011 at 6:21 pm

    i have had this lump since wednesday last week . i went to the doctor who told me it was muscular. i was not happy so went back to another who has told me it is a abcess. i have been given fluoxicillen antibiotics and hope to god these work i am soooo scared about surgery. i dont think i could go through it . ( i suffered a tooth abcuss for 7 years i was that scared) please someone give me some comforting words .

  60. mvtvcon 02 Nov 2011 at 3:19 am

    Hi All, need some help, I have no health insurance and have been dealing with this for about 7 years. It is way worse than ever. It used to be like every other month then it slowly went to monthly. Now these past 3 months its almost every other week. I am self employed which helps I can reschedule work when need be but now that it is coming this much in a months time it is very hard to deal with. So can anyone give me an idea of what I am going to be getting into money wise paying all out of pocket? Also will I be hospitalized if I have had it this long and it is coming back this much? I have a new lump. outside my anus that is hard as one of you knuckle on your had. Is it any way related to this? Also I have some kind of cyst leaking on my front side exactly where your leg and privates meet. On the actual crease, from groin to leg. It is dark black and blue color, and made itself a hole on the bottom, a slimy yellowish / blood liquid has been coming out every few days. Is this one also related? I can say the one on the front I can move it around with the skin, the one near anus is hard and will not move with skin. My 3rd hole well everyone knows where that is right above my crack which I know is a Pilonidal. I feel like I am completely falling apart. Currently as I am typing this the one that hurts the most in the one the is 1″ exactly outside to the left of my anus, but about 1/2 inch out from my anus ring. Any answers please on any of this.
    Also if I can afford the surgery how long will I be out of work, what type of meds do they usually send home, will I need a visiting nurse? I am on this blog as snooping the net for answers and help as its 3:30am and am in a lot of pain.

    Please and thanks! If it helps I am near Pittsburgh.

  61. Steveon 02 Nov 2011 at 6:06 am

    My advice is to go see your doctor immediately. If you don’t have a regular doctor that you visit, try to find one that specializes in abscesses. Whatever the cost, you need to have that taken care of. You can find out if the surgeon has a payment plan perhaps. No price is too high for your health.

    Let us know what you find out and how you are doing along the way!


  62. Cathyon 04 Nov 2011 at 4:05 pm

    mvtvc I have exactly what you describe in the crease of your leg. This disease is called: Hidradenitis Supperativa. Look it up, you will find it most likely describes you. This is where mine all started. My right groin, then moved to my left groin, then my inner Labia, and then my outer labia, and finally my buttocks. I fear where it will go next. Yes, it may very well be related as it forms “Tunnels” under the skin. I know how you feel, I have 10 going all at once as we speak. Mhhmmm….I have 4, two near my anus, and two on the outside of my buttocks. Well, my doctor said it would take about 3 weeks to completely heal, but we all know that I am a very slow healer, hence my other open wounds that I had originally had surgery on. Your doctor can answer you best.

  63. Cathyon 16 Nov 2011 at 7:50 pm

    Well, here we go. Surgery is scheduled for December 8th (Please cross your fingers/toes/and everything else that crosses for me!) I have already discussed pain medication with him, and this will be done under General Anesthesia, lying on my stomach….Oh Brother. I am so bad with Anesthesia and can’t stand the “Sick feeling” of wanting to puke, shaking, coughing, etc. I hope this surgery will be a success, so I can get on with my life…Wish me luck. Will post back when I can “Sit”. Good luck to all of you going through this same procedure.

  64. Steveon 16 Nov 2011 at 8:55 pm

    Good luck, Cathy!

  65. Cathyon 20 Nov 2011 at 12:35 pm

    Thanks so much steve, I am scared out of my mind, but I just want to get it over with…

  66. Steveon 20 Nov 2011 at 12:42 pm

    I understand, Cathy. I was a bit nervous too. Going under is never a soothing experience. lol I don’t regret it for a second though. The pain I had was pretty uncomfortable, so I can only imagine what you’re experiencing. I hope when you come out and heal you feel the same relief that I did. :)

  67. Yeseniaon 21 Nov 2011 at 5:45 am

    Hey everyone :) well i have been dealing with this monster since the age of 15 .. I am currently 20 going on 21 next month :)… Sooo its 4:25 am (miami,fl.) And this monster does not let me sleep.. The pain is horrific, i am planning on going to the hospital first thing in the morning to have it drained and packed for the billionth time now.. But what is worring me the most is that it has been reaccuring alot lately. (which should not be normal) this is the 6th time in 3 months that the monster decides to peak out on me…. I really want to go for the surgery but unfortunatly i am unemployeed and my husband works for our bills… So i guess ill be drained and packed a few more times.. I am glad i am not the only one who has had to live this monster.. And knows what im going through.. I no longer feel like a weirdo :) @cathy: good luck… everything will be fine.. Im gunna try to find a comfortable spot to try and sleep. (hopefully the monster lets me sleep) thanks all for sharing your exp….

    Sleepy & In pain,
    Yesenia :/

  68. Tamaraon 28 Nov 2011 at 3:24 am


    So i am 19 years old and having surgery next week to remove my pilonidal sinus. Not a really common thing i have been told for my age and gender!

    About 8 months ago i first noticed it and went to my doctor who put me on strong antibiotics. After a week of them and a growing redness and hardness on my back side (and EXTREME PAIN) my mother took me to emergency where they had me in the operating room the next day. Unfortunately it was to swollen to remove the pilonidal sinus itself so they just scraped all the infection out.

    Next week i am going back to have the “problem” removed. My biggest fear is recovery, i understand the procedure and that does not worry me it is the recovery period that is worrying me the most.

    I am just wandering if anybody had theirs stitched up with old fashion stitches? and how long did it take to heal before you could do things such as excercise again!

    I have been told by my surgeon no sitting or bending for the first 2 weeks whilst my stitches are still insitu! GAHH

    One of my bigggggest concerns is going to the bathroom. I have sorted out passing urine but it is the other way of going to the toilet that is worrying me the most and i am just wandering if anybody has any tips on how they did it with stitches and not being able to bend??

    Thanks for all the help :)

  69. Cathyon 30 Nov 2011 at 5:44 pm

    Tamara, I could HUG You! I have the SAME Worry! How the hell will I go to the Bathroom!!! LOL Yes. They are usually stitched up with old fashioned “Pinchy” stitches. I am so afraid they are going to pop when I sit on the toilet! He told me the same thing No sitting or bending for 2 weeks…UGH….When you think about it, we have no choice to sit?! Just pray you aren’t constipated, that will be the biggest problem…and prolonged sitting won’t help the area either…GOOD LUCK to you!!! I go in on the 8th….

  70. Rajnion 06 Dec 2011 at 4:15 pm


    I have some questions. I am 27 years of age and this is the first time I have ever had this cyst. It’s not painful as most of you have had and felt. I had some problems when I sat but, it never pained.

    My question is, if all the puss/drainage comes out, do you still need surgery? I have very little knowledge of this subject and needed a bit more questions answered. My surgeon only told me that I need to continue taking medication and he will see me in 2 weeks. He has opened up my cyst a bit more, so more puss or drainage can come out.

    Now before I got on any anti medications, one of the nurses did a culture to see what was coming out. The results identified what it was and I was prescribed with another medication now. Which I’m currently taking.

    Now, I guess, after this bacteria is completely out of me, do I still need surgery? The way I’m understanding all of this is, that surgery is necessary to have all the drainage come out and than the wound is left open for healing purposes.

    So, if the bacteria is out of me, or is cured and all the drainage is gone, than why would I need the surgery?

    Thanks in advance for all your help. Sorry to sound a bit immature on the subject, but like I said I have very little knowledge of this subject.

  71. Yesenia A.on 13 Dec 2011 at 1:29 am

    So… I went to the hospital.. They Made A very big incision (Dr.Had to cut me twice) which was very unpleasant. The surgeon told me that looks to be very deep and 3in wide and 4in long (Friggin Huge!). Supposedly, its like a seed like thing which is an ingrown hair that is growing in me. And the only option I have is Surgery (kinda knew that lol). Mostly didn’t feel much when they cut me open the Dr. had to squeeze around the area, that hurt a little. They put me on Antibiotics (Bactrim 800mg) I had to take them every 12 hrs for ten days. Annnd referred me to a Surgeon.

    Feel ALOT better at this moment. Kinda starting to feel the Monster once again. :/ hopefully it doesn’t came back for a while.. This is such a frustrating situation that i wouldn’t want even my worst enemy to go through this.. I am planning on the Surgery indeed. :)

    @Rajni: Basically the “problem” is still there, The Dr. only controlled the infection (Puss). Surgery is needed to take out the root of the problem. It’s like and ingrown hair that gets infected over and over and over again. That’s why the only solution to getting completely rid of this is through taking it completely out. Yes the wound is left open for healing purposes, Although some do get stitches. Hope all goes well.

    Best of Wishes to All and Good Luck :)

  72. Lissetteon 25 Dec 2011 at 11:47 pm

    Wow!!! I really did feel like I was the only one who had to deal with this constant pain….I’m 22 yrs old lives in Miami, fl before the polinidal cysts I was diagnosed with hidronutis supportiva at the age 17 I think that was worst than this I had huge golf sized boils where I couldn’t walk sit etc and still forced myself to go to work thankfully those went away when the pilinodal cysts came out… I cant imagine dealing with both at once…. This cysts I have been dealing with for almost 2 yrs now changed the person I am… I no longer feel the urge to have sex, very self conscious, when in pain I’m miserable have an attitude problem… I go into depressions where all I do is sleep… But none the less I manage to work everyday, take care of my 4 yr old and manage to try to not show to anyone when I’m in pain… I find that Motrin 800 is the only thing that takes the pain away that I can manage to stay awake with and function… Ive tried everything from iodex, menthol, draining, cortisone shits… Till i decided to feel better about my self I would get a fat transfer procedure I was so hurt when I found out that I was not eligible to get it done because of this “thing” I did not ask for was there… Turned out the surgery to remove this thing was $3500… I coukdnt believe
    that all this money i had saved to get sonething i wanted was gonna be spent on thevremoval of somethung i idnt ask for… so my mission began i have no insurance so I went to palmetto hospital where they drained all felt good while taking keflex(which is free at publix) and some other antibiotic… From there I was not satisfied so I went to Jackson waited 8 hrs to get referred to a general surgeon at Jackson luckily I got an appointment fast and went last Tuesday… As soon as the doctor saw me he said this must b removed and left open to heal from the inside out…. So I am now waiting for an appointment to get the outoatient surgery done… Well turns out yesterday December 24 the stupid thing decided to get extra big bigger than ever…. Motrin 800 is nt working… Neither is Percocet nor Vicodin… I can do nothing had to send my daughter to her dads house and I don’t think I will b making it to work tomorrow……. Let’s just say I’m no longer looking forward to a fat transfer I now want this taken out!!!

    Frustrated and in excruciating pain not to mention drugged up with all the pills I’ve mixed since yesterday!!!!!

  73. Lissetteon 28 Dec 2011 at 11:54 pm

    Good news surgery has been set for Friday at 6am :) did per op labs today…. I am scared shitless!!!!!

  74. Cathyon 06 Jan 2012 at 12:06 pm

    Hi Lissette. Hi Steve…I am typing this standing up…..well, I went in for surgery yesterday, and the results were 25 stitches. It was bleeding like crazy last night, scared me…the gauze below it fell out, so had to re do it this morning. My ass looks like the bride of frankenstein….Still haven’t had my first bowel movement yet..kind of scared to go…there is a few stitches to the right of my rectum….I am on Vicoden which does not help with constipation issues….crossing my fingers it won’t be painful. Am allowed to take a shower on Sunday…can’t wait for this thing to heal. Going back to the surgeon in two weeks to remove them….Wish me luck! GOOD LUCK Lissette!!!!!

  75. Steveon 08 Jan 2012 at 6:40 pm

    Rajni – None of us are doctors, but the way I understand it is the drainage is the contents of the cyst or abscess. As Yesenia said, what needs to be removed is the sack that contains the drainage or it will just fill back up and need to be drained again. Your doctor/surgeon will know best though.

    Lisette/Cathy – Best of luck on your recovery! One of the most painful parts I remember is sitting initially at first, then bathing. Washing the stitches was a bit uncomfortable. Once the stitches were out it was a whole lot better. :)

    Good luck to everyone going through this!

  76. Melissaon 14 Jan 2012 at 2:41 pm

    Most painful experience ever… Mine busted yesterday the smell was horrible smelled like death… Went to urgent care to have them look at it and all they did was put gauze told me to put warm compress gave me bactrim and Vicodin … It feels ok for now, but should I. Get a second opinion because I don’t want to go thru this again

  77. Steveon 14 Jan 2012 at 5:11 pm

    Melissa – Did the urgent care clinic diagnose it as a pilonidal abscess? If so, it’s almost definitely going to be back once the area where it burst closes up. I had mine partially removed by a dermatologist, but it just came right back in a matter of weeks. Felt great to have a little relief while it was at least partially drained.

  78. Cathyon 16 Jan 2012 at 9:14 am

    Vicodin is a wonderful drug, isn’t it? Mine is ALL Fu***ed up! The left side is perfect, but the right side has pulled away from the stitches causing a big gash open wound, that appears to be healing from the inside out, but leaks and bleeds excessively. It’s about to drive me insane. I go back Wednesday to get the stitches removed, but he did mention that he may have to keep them in longer…I hope not. I haven’t been able to sit for two weeks and only lie on my side and walk. Sitting on the toilet is “Grand”. and the pressure from it, just starts the draining all over again. I am so frustrated and can’t wait for some “normalcy”.

  79. karanon 17 Jan 2012 at 7:07 am

    hello all…
    just had my cyst removed about 4 days back… at home now, for some much needed rest…. the doctor stitched my hole up, not many people get those, i guess…
    its quite painful when new and quite a handful… just wanna get that over with…
    as for the anesthesia, i was given one in my spine… not enjoyable, but different nontheless…

  80. karanon 17 Jan 2012 at 12:56 pm

    oh and one more thing, it itches like a mother’, man….
    any suggestions ?

  81. Cathyon 19 Jan 2012 at 11:26 am

    Yes…my mother always told me if it’s itches it’s healing, so count your lucky stars! My doctor on the other hand thinks that’s an old wives tale. :) I had General anesthesia because mine was really advanced. Mine is all stitched up too, 25 stitches…I hope you get better quickly. I have a long way to go. He has not removed my stitches as he said the skin is not holding together. I am a poor healer, always have been. I wish you luck and hope yours works out for the best, I have to return in a week and see what he can remove. Take Care, Karan.

  82. karanon 21 Jan 2012 at 6:35 am

    Just got half my stitches removed yesterday and the rest come out on monday. Dont know why the doc did that but who am i question…

    im hoping your mums wiser than your doctor on that one. haha
    wow 25 stitches ? how big was it ? i cant expect a pilonidal cyst to grow that big.

    anyway hope you heal faster this time… all you have to figure out, is how to pass the time, during…
    best of luck for the doctors appointment, cathy… it’ll be much much better, trust me
    and take good care of yourself :)

  83. Cathyon 23 Jan 2012 at 12:32 pm

    Thanks Karan, I hope so! Mine was a bit more complicated than that…See, I didn’t have a “Typical” Pilondial Cyst, what I had was one “cyst” to the right of my buttocks, and then half way down, towards my rectum were two open wounds.
    ( )
    ( )
    So he had to fuse that skin together, made some kind of a Z out of it and connected it to the skin on both sides of my butt…That’s were the 25 stitches came from. I have a condition called “Hidradenitis Supperativa” which “mimics” a Pilondial cyst when it is on your butt. Anyways I am glad they took half of your stitches out…and that you won’t be left with an open wound when they take the rest out. Best of luck with your next appointment.

  84. karanon 24 Jan 2012 at 3:46 pm

    thanks, finally got all of them removed… the would feels so much better, you have no idea.
    how you feeling now, cathy ? hows the healing going ?

  85. Cathyon 25 Jan 2012 at 6:51 am

    Hi karan, so happy for you! :) I’ll soon find out today…hopefully he will take some stitches out. But if my skin doesn’t hold together, I don’t want to be dealing with two open wounds. One is enough…I’m hoping the silver cream makes it more shallow. Still can’t sit too long…Will know more, tonight.

  86. Cathyon 25 Jan 2012 at 5:02 pm

    UPDATE: Just came back from the surgeon. Still not stitches removed. Problem being that the dissolvable stitches below it, have healed and are closed. But if you press on it, the skin holding the removable stitches together Opens….leaving me with yet another open he said maybe…he can take a few stitches out next week. Everything else looks good and is coming along…just have to close the wound on the right side, but he said it is starting to look more shallow. PHEW….He also said he can’t keep me from my life, and that I can start doing normal things…as far as sitting he said I can sit for 1/2 hour up to 4 times a day, depending on my pain level…thank God for Vicodin…while I only take it twice a day…I at least have 4 hours of relief in the morning, and 4 hours at night. Will see what next week brings.

  87. tomon 01 Feb 2012 at 9:01 am

    Need help with healing:

    I had my 2nd pilonidal cyst removal surgery in Nov 2011. It was an open wound healing this time. First 11 weeks went great, it healed from the buttom up and every 4 weeks my surgeon said it was on track and looked good.

    Week 12: I wake up in pain and the wound which was almost closed (1 in by 1 in left of raw skin on the top layer) opened up to about 2 in by 2 in. The newly formed skin on the top has broken apart. I saw the doctor and he said to continue treating it by showering, then using saline and then putting a creme on to help the skin from drying out and cracking.

    Has anyone had a similar experience and if so, what did you do and how long did it take before the skin was fully healed and strong again?

    I feel like this will never heal. Really frustrated and defeated. I want a normal life again of working out, running, playing sports, etc.

    Anything you can share would be appreciated.


  88. Cathyon 01 Feb 2012 at 2:28 pm

    Yes, Tom. This is the story of my life. Did he give you “Silver Sulfadiazine” Cream..because I find that, that works best for me. It took about 3 to 6 months each time…I know how you feel. I have a condition called “Hidradenitis Supperativa”, big fancy word for “Wounds that never heal”. They are located in my groin, buttocks, and Inner and Outer Labia…as you can imagine it is a big pain…Try asking for silver sulfadiazine..if he has not already put you on it…a round of antibiotics may help you as well. KEFLEX works for me. It does take time but it will eventually heal over…Good Luck.

  89. ciaraon 04 Feb 2012 at 2:23 pm

    I fell on my tailbone and a small cyst formed,it hurt soo bad i couldnt sit,walk,lie down..everything was soo painful.. i went to ER where they numbed the area and cut open to drain infection didnt take too long and since it was numb i mainly felt preasure.. the doctor packed it and put a large bandage..i go back tommorrow to have the packing removed i am wonderin what the next step is? Will it hurt getting the packing removed???

  90. Cathyon 04 Feb 2012 at 2:54 pm

    I’m afraid so ciara…is there anyway you can take some pain medicine? Even if it’s just tylenol, or Motrin may help. My surgeon likes to pack my wounds too, but my brother in law almost passed out when they removed his….so be prepared. Just tell him to GO SLOW if it bothers you…What I have to do to remove my packing is to wet a hot towel and make the gauze very soft and massage it a bit…that way it comes out nice and easy. If he wants you to continue packing it, be gentle to yourself when you pack it…you don’t have to shove it way in there..take a deep breath and tell him to go slow…I wish you luck.

  91. almaon 06 Feb 2012 at 10:16 pm

    hi everyone,
    Experienced my first pilonidal cyst and i have surgery scheduled for Feb 15th. It’s all i can think about!!
    I’m nervous about surgery but reading Steve’s experience gave me hope that it is the best option. I can almost cry reading what you are all going through. I will try to update everyone as to how my experience went.

  92. Cathyon 07 Feb 2012 at 12:42 am

    Good Luck my friend…the anticipation of surgery is always the worst, I too was very nervous, in fact that day my blood pressure was 150/98….and my sugar was 145! It is very easy to be nervous…Best of luck to you…

  93. Steven Jon 15 Feb 2012 at 3:08 am

    Hey guys and gals…. Well i have pilondal cyst (self diagnosed) from pictures and research.. Its not painfull, and it only bleeds every now and then and i havnt noticed any color other then red, my mother said my father had one and it went away on its own… So i was wondering has anyone had or heard Of one going away on its own…. Its not painfull… Sometimes i dont notice that its there…. I have a HIGH anxiety trigger and i am scared..

  94. Cathyon 15 Feb 2012 at 7:41 am

    Yes. Mine came and went, every 3 years since I was 10. But as I got older (Much Older) It became harder and harder to heal, and that is why I had surgery on mine. You will be as lucky as your father if yours goes away on it’s own. Keep an eye on it.

  95. Steven Jon 15 Feb 2012 at 12:42 pm

    Thank you cathy just the hope of it going away without surgery puts my anxiety at ease… Thanks cross my fingers and take good care of the area.

  96. Cathyon 15 Feb 2012 at 12:55 pm

    Your welcome Steven, Good Luck.

  97. Johnon 18 Feb 2012 at 3:35 am

    Hello all,
    I had a pilondinal sugery on the 10th feb (last Friday), it was a closed incision with a drain and 16 stitches running down my crack. It’s only been a week but it’s pretty swollen and feels like there is fluid in there, no pain though just so much scar tissue, does anyone know if this swelling is normal any responses would help thanks
    Ps I booked into the doctor already but would rather hear from people who have gone through this thanks

  98. Cathyon 18 Feb 2012 at 6:18 am

    Hi John…mine as well was a closed incision, but I didn’t experience any swelling with it. I had 25 stitches, mine was a bit more complicated and travelled almost to my rectum. I am so glad you don’t have pain. I have pain…and yes, scar tissue. It almost feels “numb” even though I had surgery the week before yours. Good luck at the doctors’ I hope what you are experiencing is normal….Keep in touch.

  99. almaon 18 Feb 2012 at 3:20 pm

    hi, had surger on the 15th of Feb, and so far so good, feels numb and sore, but hope i never have to have surgery again. Good luck to all. I think its key to get surgery as soon as possible as more tissue can be damaged if left to alone to swell up many times.

  100. Cathyon 18 Feb 2012 at 4:06 pm

    Hi Alma, I know the pain and numbness you feel. I had my Pilondial cyst on and off 3 years at a time since I was 10, but never had surgery. That was 35 years ago! Can you imagine?! But when he did the surgery he found NO Tunnels, No Infections, No Nothing! I always joked with him that he would probably find the brooklyn bridge when he operated on me. I was shocked to say the least, yet grateful. I hope as well this is my last surgery. Happy Healing!

  101. Johnon 19 Feb 2012 at 2:03 am

    Hi Cathy,
    Thanks for the good luck and all, so I went to the docs today and he said that my recovery is going great he said my swelling is normal and I may even get more but for the mean time it’s going well just feels like there is a huge chunk missing from my butt cause of all the scar tissue, also I feel your pain with the stitches as mine also go right down to my rectum like literally millimeters away! It’s crazy to think what they did in there when they open you up. Yuck anyway I hope it never comes back those last five years or so sucked!! Thanks again

  102. Johnon 19 Feb 2012 at 2:06 am

    Also has anyone had the drain in for more than 2 days cause I had mine in for 4 but most stuff I read up most people got them out the day after surgery. It was great fun carting that thing around and then getting it pulled out!!

  103. Cathyon 19 Feb 2012 at 2:57 am

    Your welcome. John, I’m glad everything is going well for you. They never gave me a drain…that must be horribly uncomfortable. Glad you are doing OK.

  104. Bukkyon 27 Feb 2012 at 11:13 am

    Hey. Glad to know yOu feeling better now. I have the same condition. I am currently on nhs waiting list for funding because my surgery is going to be by a plastic surgeon. Can you please tell me if you went private for your surgery because nhs is taking their time and I am getting very impatient. Do u have an idea of how much it will cost if you did go private. Thank you

  105. Johnon 28 Feb 2012 at 2:31 am

    Hi Bukky,
    I was on a public waiting list and it probably took about 3 months to get in, hope this helps.

  106. Asheon 20 Mar 2012 at 7:55 pm

    Hey All! I’m 29 yrs old & this is my first pildional cyst. I went to urgent care a few days ago because my cyst burst & had to be drained. I felt horrible, it smelled of death & I cried as I told my BFF that it was like zombie juice coming out of me. When my Dr. Told me I would need surgery I felt even more terrible. In these last few days I’ve been very depressed. However, coming across this posting of testimonials has been a sigh of relief that I am not alone or the only freak bleeding puss from the ass. I was down. But now I’m trying to be more upbeat. I go back to the Dr in a couple of days to see if my infection is going away so I can make an appt for the surgery. I’m scared. I’m a self employed artist with more time than money & no insurance. So I’m just praying that I can get a payment plan option with the surgeon. Thank you everyone who posted. Your insight helped tremendously & made me feel like I am not alone in the struggle of healing & wellness.

  107. Cathyon 21 Mar 2012 at 5:44 am

    My dear. I have had Pilondial Cysts since I was 10, on and off for years. I had surgery at the age of 44, and am FINALLY Healing. Slow, but sure. The recovery is no picnic in the park, but mine was the size of a softball, so fear not. Trust me, you are not alone.

  108. almaon 21 Mar 2012 at 9:42 pm

    To Ashe, definitely get the surgery / payment plan. You can always negotiate them down later. The quicker you get surgery the better. Im 34 yrs old, I’m not the hairiest, so I think maybe because my job requires me to sit all day…I dont know why this happened … . But the main thing is that you get the surgery.
    Mine was a closed incision. After two weeks you should feel alot better…
    The only problem im having now is some rash around my incision…
    Good luck to you. Good luck to everyone!!

  109. Devon A.on 13 Apr 2012 at 1:42 am

    Okay so I’m 17 and I just got my cyst lanced for the first time and it wasnt that painful because of the numbing medicine they had. Let me tell you I didn’t fell a thing! One thing I am very afraid of is what if this cyst comes back and then I have to get surgery I mean I read everyone’s stories and how it felt so much better afterwards but I never had surgery a day in my life! Reading all these stories I know I’ll be asleep for the whole operation but what do they do during the surgery? About how long will it take before I can start to be active again and go back to school? Can someone please help me cause I’m a little nervous about the whole thing.

  110. Cathyon 13 Apr 2012 at 8:05 am

    Well…what they do during the surgery is cut away the bad tissue and the tunnels beneath it…although I asked my surgeon if he found the London bridge under there, and he said No, there was not much tunneling at all, surprisingly since I’ve had it on and off since the age of 10. Now being active is another story….it’s gonna take a good month or longer for you to feel normal again…as far as school is concerned you have to talk to your doctor about that. Mine was very advanced so sitting was only done 15 minutes twice a day. Once again, your doctor will tell you how long you can start sitting for and being active.

  111. Devon A.on 13 Apr 2012 at 9:53 am

    Thank you so much (:

  112. Cathyon 13 Apr 2012 at 10:05 am

    You’re very welcome, and good luck to you. If you have any more questions feel free…

  113. Sueon 15 May 2012 at 11:45 am

    Boy, it’s wild to see what this blog entry started so long ago, and how many sufferers there are out there.

    So much has been said here, I don’t have much to add except my ray of hope:

    I had the surgery. It worked. The damn Alien in my butt never came back, thank God, knock wood. My back view is normal except for a tailbone scar maybe 1 and 1/2 inches, faint. A small price to pay for not dreading that thing coming back again and again.

    Be aware of the difference between getting it drained (temporary relief) and having it removed (surgery, and more permanent for most people).

    I had it drained 2 weeks before the surgery- it was huge and hurt like the devil. The doc sprayed something that felt like frozen whipped cream on my tailbone and lanced it, and some terrible stuff came out, but it didn’t hurt that much (just psychologically).

    For the girls here – mine used to come or go with my periods. If I had sex on my back, putting pressure on the area would flare the thing back into life.

    It is easy to make fun of this condition, thankfully friends and co-workers were kind about it. I used a donut cushion after surgery and it helped a lot.

    After you have this thing come and go often, you don’t realize it, but you begin running your life around trying not to piss it off and make it recur, you’re washing, changing sitting and laying positions, hoping not to sweat etc You don’t even realize how much of your brain is given over to silently worrying about it. You feel shame about the location, and the gross stuff that is coming out of you. In the bathroom alone, you mess with hot compresses and paper towels and gauze and devise stuff to deal with it.

    Honestly, I am a wuss, kept trying to evade the surgery, lived with many, many recurrances. Wuss or not, I did finally get the surgery and that’s my advice to anyone with this. Stop diddling around with it, it is ruining your quality of life. Just be done with it, and you’ll be amazed how free you feel.

  114. Kittyon 18 May 2012 at 12:22 am

    OK FIRST PEOPLE…don’t go to just any doctor. Pilonidal Cyst is a SPECIALTY field….do a little internet research and find an MD that has been trained in the Bascom surgery methods. THESE CYSTS have tracts or sinuses under them, and if they are not removed and cleaned out, they will return. My 18 year old son had one, and had a pilonidal ‘pit picking’ procedure done, and so far so good. If you go to the ER or see just any doctor they will treat it like a regular abcess which it is NOT. See a specialist. My son’s doctor has a surgical practice that consist of 60% Patients who have Pilonidal cysts….people come from hundreds of miles to see him….Removal from one of these type of doctors results in an 85% or better cure rate.

  115. Red skyon 18 May 2012 at 12:30 pm

    I shaved my bikini line with Philips electric shaver, it pinched my skin, and next day near anus I had itch, I put a moisturiser oil based over that part. In next two days a lump appeared. It hurt, so I took hot baths, and home medication, hot compress and on sixth day, I was in agony, this lump became golf ball size and bursted with blood and foul puss. It was a sudden relief.

    I had chils on my spine and went to see gp, he suggested emergency hospital, and not to eat anything. The dr were so busy they see me next day in the evening, these 36 hours I was fasting, except few jabs of antibiotics on my arms, they kept telling me dr can arrive anytime so I better be ready than sorry.
    The seventh day I had a surgery. Now I have a wound which is open. The nurse have been doing packing the wound and I am on antibiotics. It’s a week today, the packing is usually very wet with pus, the dr said it was perianal abscess. It has a sinus toward thigh, not toward anus, it’s 2.5 inches deep and 2 inches wide.

    Initially, the packing change was hurting like st. And dr gave me strong pain killer to take it half an hour before the change but I opt to suffer the pain than to take pain killer. They make me drowsy and sap energy.

    Nurse said next week (2nd week post surgery) she would reduce packing, only twice a week instead of everyday. As this will heal the wound from inside.

    I looked into a mirror, I could see a tunnel of pus (sinus)towards thigh, I hope it clears out through packing and not trapped in healed wound, as this may cause recurrence.
    I don’t drink milk as it creates pus and drink turmeric in orange juice. Which is natural anti biotic.

    Surgeon asked me to keep the wound area dry and Use hot towel to clean that part. So I lie down whole day, contemplate what has happened and see movies on YouTube. It’s emotionally draining but now after a week I am getting to terms with this thing. It does not hurt except when I sit, so I don’t sit. Nurse told me recovery time is 3 weeks.
    I take espaghula husk to soften stool and green smoothy(zinc) to heal it soon.

    I wish I never had ignored my constipated, fissures, hemorride condition and have taken zinc before , I would never have a possible hair pull turn into abscess.
    Well what has happened has happened. I had opportunity to see dr when this was mere a small itchy lump, and had a chance to get it right through antibiotics but I was embarrased as its near anus. I had a chance to go on 4 th day when it was painful but not too large, but I read about surgery and packing , I got scared and delayed it. Which meant more prolong packing and bigger scar. I am so gutted, as I been embarrassed and scared while it could have been less pia but in the end I had to go through it all.
    So if you have a lump, get a surgeon to look at, no need to delay, there is no escape from this nasty thing it’s like a cancer it eats away the healthy cells every passing day.
    Once surgeon has done the surgery look after it and a healthy happy life will be there in the end of tunnel.

  116. enodeon 24 May 2012 at 2:07 pm

    I just want to take the time to share my experience, I am a healthy, athletic 26yo male with no prior health complications. This was my first pilondial cist and hopefully my last. My best advice to give from the entire situation is to research and find the right, qualified surgeon for the procedure. Seeking out a specialist in your area is key. I had mine drained first and right when I was diagnosed (which was way more painful then the actual surgery). After being on antibiotics for two weeks, to rid the infection, I underwent the removal.
    I was worried and nervous at first from hearing all of these horror stories, but it was very simple and painless. With the general anestetic, you are not able to feel a damn thing! There is mild pain for the first couple days but nothing a pain killer and ibuprofen can’t take away. Because I acted quick and took the proper procedures for healing, the surgery was simple and very affective. Pay close attention to hygiene, showering and changing for dressing. Also, (just a suggestion) you might want to try and change your diet before and during the surgery. Make sure you drink lots of water, eat fruits and greens and things high in fiber. Keeping the body healthy will greatly increase the quality of healing and time of healing.
    Follow the right steps and do your research and it will make this situation an easy one. The surgery for removal is a must. Best of luck to all who are still going through this and those who are having the procedure done!

  117. Erickon 25 May 2012 at 2:38 pm

    Hey guys, I feel your pain. I hate this stupid thing. I just finished having a second surgery for it with the stitches closing it up. My brother had it but had the open recovery. And to me that might be painful but it minimizes the recurrence. I guess I don’t have good luck cause as of today it opened back up. So now they’re giving me aquacel to see if It can close from the inside out. But Im so frustrated I’m only 20 and I’ve had it twice! Don’t want to have surgery again so I’ll see if this aquacel works so I can let you guys know.

  118. Jameson 12 Jun 2012 at 9:55 pm

    Im a 16 year old male and I just had my first abscess this year. I had noticed a bump on my tailbone for a few months, but as it wasn’t really painful I just ignored it. Suddenly one day (after I sat through a 3 hour choir practice) I had this intense pain at my coccyx. I went to the ER got prescribed antibiotics (made it significantly worse) went back to the ER two days later and got it lanced. I had packing for 2 months afterwards (packing was more painful than the cyst). The surgeon who got referred to me suggested getting laser hair removal on the area to try to reduce the chances / variables of it coming back. Followed her advice and so far (knock on wood) it has not come back :) however I do find that my tailbone area does get a bit sore after prolonged sitting but nowhere near the intense pain of before. I was just wondering if anybody has had the same laser hair treatment, and if so what their result was?

  119. Kateon 27 Jun 2012 at 1:19 am

    Hey, im 20 years old and have had 9 surgerys to remove the same abscess that keeps coming
    Back. Has this happened to anyone else?

  120. Cathyon 27 Jun 2012 at 6:28 am

    Holy Cow…I am SO Sorry to hear that! I just had mine removed in January and I hope it’s the only one! I would never want to go through that again! You Poor Thing! I am still in the midst of healing and the scar tissue alone is quite painful, plus I still have an open wound, about an inch from my rectum that is still open, draining, and bleeding. (Mine was very advanced and needed a z-flap of 25 stitches) I hope this thing never comes back…and I feel bad for you. Nobody should have to go through that many surgeries!

  121. Almaon 27 Jun 2012 at 11:27 am

    Wow Kate, I am so sorry, have you considered another specialist? How about laser hair removal ? Maybe it will help? I got the first one removed 6 months ago and i hope its the only one.. Mine was not very advanced so I am not sure if that’s why yours keeps coming back? Keep us posted and dont give up. Get second opinions and laser hair treatments if possible.
    It is such an inconvenience. Hope you feel better soon.

  122. Jackieon 27 Jun 2012 at 12:00 pm

    Last friday i had my abscess drained. It was so painful and i felt lightheaded and nauseous when i stood up. I went to the surgeon 2 days ago so he could change the packing and that hurt a lot too. He cleaned the wound with alcohol :( I was crying so hard. I have to go back to him tomorrow so he can pack it again but when i looked at it today, i saw that most of the packing is coming out.. is this normal? i am so scared to have surgery and the doctor said i would have to wait 6 weeks before he can do it. i’m only 19 though and i have to go to college in august. i’m terrified that its going to hurt so much. to make matters worse, 7 weeks ago i partially tore a tendon in my foot and the doctor waited until last week to put a cast on.. the cast goes up to my knee which makes it hard to be comfortable laying down because i can’t sit because of the cyst. i’m so scared :(

  123. Cathyon 27 Jun 2012 at 12:33 pm

    OMG Jackie….Alcohol?! I feel so bad for you. Packing is bad in general but why does he have to add alcohol to the mix?! Are you sure it wasn’t “Peroxide?” You should call him up today and ask for a prescription for VICODEN or any other pain medication so you can withstand the packing again tomorrow. UGH. That’s OK that’s GOOD! Let the packing come out on it’s own! In fact, jump in the shower! Every time the doctor packs mine, I have to jump in the shower and let hot water saturate the packing so It will come out! I can’t just “Pull it out” or I’ll scream! LOL Sorry to hear about your tendon, is it better if you lie on your side with a pillow propped under your leg? The combination of the two doesn’t help matters does it? Hopefully One of your doctors can give you some pain meds..that will help both matters. Good Luck.

  124. Mindyon 27 Jun 2012 at 12:50 pm

    I am 9 days post op and I think I am going crazy. Can’t sit only for a couple of minutes. Laying down is my best option. Have an open wound that has to be repacked every 2-3 days. Can anyone tell me how long this pain is going to last. I am a mess. I have taken all the Percocet and now I have vicodin. I go see the surgeon next week. Have been to the wound clinic they say it looks good. Any info would be nice.

  125. Cathyon 27 Jun 2012 at 1:09 pm

    It takes a good long while for the pain to disappear no matter what the surgeon may tell you! Vicodin works really well for me, for 6 hours enjoy the pain free relief. You should also take it about an hour before each packing change, as it will help with the pain. I had my surgery in January and look, now it’s July. There are times when I sit for an hour long car ride, and I will suddenly feel as though I have a “Charley Horse” in my A**. Try lying on your side it’s more comfortable, and sit on a pillow when you DO Sit down. Warm showers help a lot.

  126. Cassieon 05 Jul 2012 at 8:30 am

    So, obviously the reason I’m on here is because I have a pilonidal cyst. I diagnosed myself when I was 15, thanks to Google :), and then had it confirmed at the doctors office. I’m 18 now and have had it drained twice, the first time it actually ruptured on its own, during school, so that landed me in the er and they “finished draining it” and was told to go toy doctor in 3 days to change the packing, also put on antibiotics. They never told me surgery was an option, I found that out on my own. About two months ago the site became inflamed, like half the size of a golf ball, no exaggeration; I couldn’t even stand straight up without pain shooting through my backside, on top of that, they had me wait for two hours tops, not a pleasant wait. The er dr was the first professional to tell me I needed surgery this time, but they had to drain the cyst first, so he drained it, told my mom and I that he’d set up an appointment for surgery. I was put on antibiotics, again, but we were never notified of anything, so naturally the thing returned. It drained blood on the second, and is now inflamed, again! I’m pretty pissed that they never really did anything to help, sure the drainage gave me relief, but only for a period of time. So now I play the waiting game, because I have a drs appointment in a week, hopefully the thing doesn’t get any bigger, but I sure as hell am going to demand surgery, because I don’t want to spend my first year of college worrying whether or not I’ll have another episode of pain.

  127. Chadon 05 Jul 2012 at 10:48 pm

    Hello everyone! I just had my cyst removed about 3 weeks ago. Mine was on the large side, with 16 stitches starting from my tailbone running just shy of you know where. I also have a drain tube. It’s been in since the surgery. Hopefully the doctor will pull everything Monday.

    Steve is correct, if you have a cyst it has to come out. It’s best to get it out while it’s still small, trust me.

    Some of you expressed fear of the surgery. Tell your surgeon and they can hook you up with something right before the surgery. Mine prescribed Valium and I didn’t have a care in the world in pre-op

    They used general anesthesia on me, yeah the breathing tube made my throat sore for two days. Honey and peanut butter helped sooth my throat and I could talk a little. Don’t fear it though, because it’s there to make sure you keep breathing. Plus you have 1-2 nurses that are there just to watch over you.

    Make sure to clean the area everyday. The hospital gave me some stuff to shower with the morning of the surgery and had a lot left over. You can use it to wash the area, just be sure not to catch a stitch. The more you keep the area dry, the faster it will heal. Even if it means sitting naked with your butt in the air for a few minutes. I also take a bath in Epsom salts, then place gauze at the bottom of the stitched area. It just helps to keep it dry.

    If for any reason, you feel a fever. Check it, if it’s 100 or higher call the surgeon. I developed one over the weekend and went to the ER. They said it was cellulitis. They gave me to shots and some antibiotics.

    Again, the longer you wait, the longer it takes to heal. Just get it out.

  128. Mybutthurtson 20 Jul 2012 at 2:14 pm

    Hey guys. I had surgery to remove my pilonidal abscess over 2 weeks ago. It was stitched closed because it was pretty small, I would say grape size, but I’m not 100% sure as I forgot to ask the surgeon how big it actually was when they opened me up. I got my stitches out last week. But my question is, is it normal to STILL feel just a bit of pain (more correctly tenderness, because it is so mild) when I push my buttocks up? I still sit on my side because I’m afraid of making it worse. I hope this tenderness doesn’t mean it’s coming back though, I’m really worried. I keep reading all these replies, and most people are saying their pain stopped between 1 – 2 weeks. And mine has to if I leave my butt alone but I wanted to test it so I pushed my butt cheeks up and still felt something.

  129. Cathyon 20 Jul 2012 at 3:49 pm

    Yes. Very much So. For instance, I had surgery in January (Mine was huge) 25 stitches, from the top of my butt to an inch from my rectum. And Yes…I still feel pain from the scar tissue that has already healed…and am quite “Lumpy”. I had to have a z-flap done on mine. Yours sounded very mild but not unusual at all to experience tenderness. I am still on VICODIN.
    I hope you feel better soon, but I think my pain is here to stay.

  130. Almaon 20 Jul 2012 at 4:47 pm

    Hello to Mybutthurts hee hee. Yes, its very much normal to be tender even 2 weeks after. My surgery was very much like your size and also closed stitched. I felt the tenderness for a few months there after. It’s been 5 months for me and its pretty much normal for the most part. A few discomforts here and there but mostly normal.
    To Cathy! I hope your scar tissue will heal eventually I do not think its there to stay, I hope not but it may take more time for you with the z flap and all…

  131. Cathyon 20 Jul 2012 at 7:01 pm

    Thanks Alma…it’s been a big cramp in my A**….Literally!

  132. Mybutthurtson 20 Jul 2012 at 10:25 pm

    Hahaha thank you guys.
    I guess it won’t ever feel COMPLETELY normal (the way it was before this thing appeared).

    I wasn’t expecting such quick answers, I appreciate it.
    Hope it goes well for you Cathy.

  133. Cathyon 20 Jul 2012 at 10:53 pm

    Thanks. :) I am crossing my fingers. won’t ever feel completely normal, but at least it’s gone…I believe what you’re feeling is scar tissue..which sucks…You can ask when you go back to the doctor..I see my surgeon once a month. Good luck.

  134. Mybutthurtson 21 Jul 2012 at 2:37 pm

    Am I supposed to keep seeing the surgeon? I mean, after I got my stitches out, that was that. They didn’t say I had to come back (unless I had problems).

  135. Cathyon 25 Jul 2012 at 3:39 pm

    It sounds like your good to go. :) I wasn’t…I still have two open wounds that were related to the surgery that I still can’t close, so I am seeing him every month. It sounds like your free and clear! :) I find swimming in the ocean helps a lot.

  136. kirstyon 08 Aug 2012 at 5:32 pm

    I am 23 and got my first ps last may I first thought it was a bruise so my partner massgaed it but 2 days later I couldn’t sleep or get comfy so I went to walk in center where the dr gave me antibotics and said was infection 2 days after that I ended up in my local hospital and the dr said it was a ps and got stronger anti botics and told me to go bk monday 3 days later if anti botics not kicked in. I went to my dr as couldn’t stand pain and she referred me to surgeon. 6 hrs in ane and a night in hospital the next day I had it drained n stitched n went home instant pain relief 9 days after first sign. Then again this feb I got it back I got anti botics and within 6 days its popped went to hospital dr said wudnt touch it as draining and got sent home. Then 2 months later in april I got it bk with vengance I went to dr on first niggle got anti botics and for next 6 days I was bed bound cudnt stand sit on it lay on it nothing then my friend came round to c me and I called dr as was gettin stupid they told me to go hospital as nothin more they cud do, I then called ambulance who said they wudnt pick me up and to take more pain relief n lay in back of a car. 4 hours later in ane a surgeon said wud operate there n then. I was left on a ward till followin day at 4:30 nil by mouth and on a drip for infection and constant pain relief. Whilst I was waiting for op it popped and kept filin up. They removed it and left it open this time and had it packed (which hurt for first 5 days) and dressed for 7 weeks I am now on my 8th week nearly 9 and gettin it dressed still every day at doctors I have a lovely massive scare and still a hole at top which new skin grew over it and then I moved and it split again leavin the hole. I was meant to see a consultant at 6 weeks but the nhs is as slow as ever and I still waiting. Just hoping it don’t come back as its a horrible experience. Without my partner changing my dressings I would never of been able to have a bath or shower

  137. taraon 13 Aug 2012 at 7:33 am

    i have been diagnosed with one last thursday. i had it drained and was asked to rush a sample to pathology, is that normal?? i was given a course of antibiotics and told to go back to the doctors today if its no better so they can refer me to hospital to have the open surgery. im really nervous about this. are you awake or put under for that? and do you have to stay in hospital over a few days for it? im just really scared about what to expect so on a pain scale of 1-10 how painful is it? :S

  138. Cathyon 13 Aug 2012 at 9:13 am

    Hi Tara…when they refer you to the hospital, you will be under General anesthesia, which you will definitely like much better. No, no overnight hospital stay is necessary, it’s all out patient. I didn’t feel much pain after the surgery at all, maybe a 5…but they will give you pain meds. I got a nice bottle of vicodin for mine. :)Don’t worry you’ll be fine. Mine was very complicated because I had them in 4 places, so I had 25 stitches….they want to send it to pathology just in case you have an infection or something…once again don’t worry.

  139. Chaseon 23 Aug 2012 at 3:44 am

    My stitches busted what should I do??

  140. kirstyon 23 Aug 2012 at 3:26 pm

    I have been back to see myconsultant and after my two diff ops I now have to have a big op to remove a lot of skin and tissue and will have a drain in it for 4 days I worried but would rather this than more coming back :( got my pre op in week so find out wen surgery is then any one else had this op bascom cleft lift procedure???

  141. Cathyon 23 Aug 2012 at 3:41 pm

    Kirsty, you can get a lot of information on this website about that procedure and more…
    Chase, the same thing happened to me, so he just took the stitches out and let it heal from the inside out. You may want to ask him for a cream called “Silver sulfadiazine” Cream, this will help your wound.

  142. kirstyon 23 Aug 2012 at 3:44 pm

    The last op I had it healed from inside out and was packed every day for 8 weeks the first 3 days they packed it killed :’(

  143. kirstyon 23 Aug 2012 at 3:45 pm

    Cathy did you have this procedure??

  144. Cathyon 23 Aug 2012 at 6:36 pm

    Not like yours. I have a condition called “Hidradenitis Supperativa” which is a big fancy word for wounds that never heal. I had 4 open wounds in my buttocks and he fused my skin together in the form of a “Z” so they would stay closed. Unfortunately one, still remains open that I am trying to get to I have been using silver sulfa cream. I don’t like to pack them, because I can never get the packing out of me without screaming! LOL The silver cream helps, as I used to have open wounds in both sides of my groin.

  145. kirstyon 24 Aug 2012 at 12:53 am

    That’s not good. My last wound healed quick on its own. I would like to here from anyone who had this procedure to find out if it works or not

  146. beccaon 02 Sep 2012 at 10:40 pm

    Hi I have two holes sum times. It hurts bad n sum times it doesent. I go for surgury on the 11 I’m thinking its no big deal I’m getting stiched tho but ne ways if I push back there my tail bone hurts n burns n my other half said its small I’m thinking they will find nothing ne advice will help

  147. Cathyon 03 Sep 2012 at 8:10 am

    Good luck with your surgery Becca, it’s good that yours is small, it may heal more quickly. It’s good if they don’t find anything like tunnels under your skin. Just wait and see, yours sounds pretty mild.

  148. Fazon 05 Sep 2012 at 2:27 pm

    Just need sum advice I had operation yesterday surgeon told me afterwards that luckily it was very severe. I had it for about 10 mnths b4 op but I never sat on it for them 10 mnths! Lol surgery was like going to sleep waking up to find evry thing has been done it was open procdure meaning wound will heal from inside out with packing everyday. I’m a bit scared because I’ve hardly felt any pain and this is the first day back day before was surgery, I’m scared il wake up tomorrow or day after with really bad pain. I had it packed and redressed today and their was small pain but nothing much. But I’m stl taking pain killers as a precaution. Also I’m really worrying about going to the bathroom. Also has any1 else experienced this will pain appear in a day or two ?

  149. Cathyon 05 Sep 2012 at 3:41 pm

    Hi Faz…I was scared to go to the bathroom too. I bought myself a toilet raiser at the pharmacy, cause I didn’t want to sit on a “low toilet”. It was much more comfortable that way. I was covered though with gauze and tape, so it was OK. Don’t know if you will be keeping yours covered in addition to your packing…but I hope you don’t have too much pain or trouble. Keep taking the pain meds, they are a godsend. They gave me Vicoden…and it was really helpful.

  150. kirstyon 05 Sep 2012 at 3:52 pm

    Hi I had that procedure and no u don’t get pain back normally mine was heaven after op the only pain in for first 4 days packing and also wen it gets to top u feel twinges where nerves are joinin but nothin like pain u had b4. Unforunatly wen I went bk for check up 6 weeks later they said that it didn’t cure me and I have to have a bigger op called basom cleft lift procedure that scares me as researched what they do. Also goin to toilet is fine as if urs is like mine then u have a dressing on it as well as packing to stop infection. Just a tip get extra dressings and packing from nurse and get someone u trust to do it after first week or so so u can have a bath or shower. Just get them to change dressing once u had the bath or shower but still get nurses to do it every day to. Because that’s the worse part not bein able to bath or shower hope this helps xx

  151. Leonardon 28 Sep 2012 at 8:01 pm

    I also experiencing the wrath of a Pilonidal Cyst. However, this is in fact the second one I’ve had to deal with.

    First one, was back two years ago. My biological mother cut open the abcess and repeatedly drained it out for two full weeks. The pain before and after the drainings was excruciating. About 4-6 weeks of this and alcohol (yes, it stung!), and the wound began to close. The wound closed about 7 weeks after onset. During the entire time, though, it was a bloody mess. And a lot of poisonous pus being squeezed out.

    Now, I am faced with a second onset of the Pilonidal Cyst. However, this one was far more painful, and even messier than the first. Also, the first cyst had only one drainout site. This one has TWO. I started feeling a bump on September 17th near the base of my tailbone. Over ten days, the bump became steadily worse and worse and worse. I’ve been taking hot bathes and showers in an attempt to relax the inflamed site, but all hell broke loose at 2:00AM of September 27th…

    At that exact time, the bump just exploded. Underpants, soiled. Pajamas, soiled. Sheets, close. I got up immediately, examined the wound in the mirror, and it was draining rapidly. Gauze after gauze was coated in blood, pus, and plasma. And to my horror, I saw that the fluid was draining from two sites. Went to the doctor at 10AM after attempts to soak up the fluid have failed. I was referred to a surgeon, whom I would visit at 3PM on that same date, and have the draining cyst examined and packed.

    The bad news came to me that I couldn’t get the cyst removed because the area is still too badly inflamed. Now, I lie in bed with my laptop, taking anti-bios and painkillers, all the while, repeatedly changing my wraps and packings after they’ve soaked up a seemingly impossible amount of fluid. I now am cleaning the wound at least 3 times a day in the shower, and it still drains and drains.

    I am scheduled to go back to my surgeon exactly 6 days from now. Same time.

    I fear that this cyst will never go away on its own. =’( But I have work to think about. I need to make money for my family. And I can’t do it when I have one little ingrown hair backed by millions of bacteria eating away at my tailbone area.

    I am hoping that by getting the entire cyst and the two sites removed on the 4th of October that I will never have to face this nightmare ever again. I f–king hate the pain, I f–king hate the bleedouts, and I f–king hate missing work. I hate it all!!

  152. ALion 18 Oct 2012 at 8:09 am

    im ali im a 17 year old girl. one day i had this bad pain in my lower back and it was small but as the days went on it got bigger and bigger and hurt worse and worse. i finally went to my doctor when she told me it was a Pilonidal Abscess. she wanted to scheduled me for surgery but i was scared so i told her to give me a few days to see if it would go away. well now i cant even work or go to school because it has gotten so bad. i can barley sit, lay , bend over , or sleep. im on antibiotics and im waiting to go in for an ultrasound so they can take this frekin thing out. it sucks so bad. is the surgery bad? iv never had surgery and im kinda scared. but the surgeon doesnt want to do it right now because im so young.

  153. Cathyon 18 Oct 2012 at 9:53 am

    No hun, surgery is your friend. LOL If that makes any sense! The pain is worse now, and will be much better after it is removed and you begin healing. I am a bad healer, so don’t go by me, my surgeon said I have “Weird skin”. LOL It is ironic that your surgeon doesn’t want to do it because your young, it’s worse when you are old! I am 45 and mine required 25 stitches and a z-flap, that’s how bad it was. I am sure you are going to be fine, hun. They are going to knock you out with anesthesia so you won’t feel a thing. Good Luck and let us know what happens.

  154. kirstyon 18 Oct 2012 at 5:13 pm

    Surgery is the best for one of these I am currently waitin on my 3rd op date to come through I gotta have a big op bascom cleft lift procedure it looks scary but gotta be done. I have 2 lumps there all the time aNd some times I can feel it comin so my partner baths and squeezes it to get infectiion out which calms it and stops it flarring up. One thing I no is surgery is nothin compared to the pain of a pilonical abcess and on way to get rid of it is surgery anti-botics only calms it doesn’t cure it. Ur not to young for surgery if u don’t get it done now it will just come bk and b worse. I was off 1 week max from work with each op. Packing and just drainin and I am a carer so its physical work and I just took it slow but was ok..

    Hope this helps good luck

  155. jackieon 18 Oct 2012 at 7:11 pm

    hey guys. haven’t been on here in a while, but here’s on update on my condition. I got my cyst drained on june 22nd…but apparently the surgeon may have taken out the actual cyst also without knowing… anyways, my incision finally closed this past week…. after 4 fucking months!!! they told me it would close in 2 weeks…………….

  156. Cathyon 18 Oct 2012 at 8:26 pm

    4 months, lucky you! Mine hasn’t closed since January 5th! I am still battling an open wound I am trying to close which is just inches from my rectum. (I had multiple cysts, including a pilondial cyst) and needed 25 stitches and a z-flap. I am looking forward to my shining moment! Hope yours stays closed for good!

  157. Chadon 19 Oct 2012 at 1:31 am

    An update from my cyst removal on June 30th. Everything is closed and have a little numbness in spots. I didn’t have any flap procedures either. Sometimes I get a very brief pain and it goes away as fast as it came. I’m sure it’s part of the healing process and any scar tissue.

    For you folks that are nervous, don’t be. They used general ant on me and the only problem I had was coming out of it as they pulled the breathing tube. Still not that bad. Don’t wait forever to get these removed. They just get bigger over time. Like Cathy, I had a ton of stitches. After talking to the doc, I think my total was 50 stitches inside and out. So the smaller it is, the better.

    You should also know if you’re a fast healer or not. That will dictate how long you are down. Regardless, this surgery is minor compared to some. My next surgery is a spinal fusion. They are going in from the front. I could gross you all out with how that procedure goes. Anyways, get your cyst out, and you’ll feel better. Oh, one other thing. Once you heal, to help prevent them from coming back, you have to remove the hair in your crack. My doctor said to shave or use Nair (if I spelled that correctly). Anyways, Nair can be kind a harsh on the skin, but my wife found facial hair removal kit from Olay. It’s a lot less irritating on the skin. I just wanted to throw that information out there.

    All the best to everyone,


  158. kirstyon 19 Oct 2012 at 3:01 pm

    Mine wasn’t caused by hair as no hair was found it was a bump at work

  159. Cathyon 19 Oct 2012 at 4:00 pm

    Me, too…I as well didn’t have any hair. Maybe this is just a male thing?

  160. Jamalon 25 Oct 2012 at 4:47 pm

    I had my surgery 2 dAys ago, which he closed it with stitches and inserted a drain, it was quite painful after and I need Atasol every 4 hours. When they went today to haul the drain out which they said would be quick and painless they realized it was stuck. They hauled on it till they snapped it off. They had to numb it and open me back up while I was awake and look for the missing piece , which turned out to be attached to the main drain. Got sent home today and can’t sit up for 2 weeks! Good luck everyone! Hopefully it’s worth it in the end!

  161. kirstyon 25 Oct 2012 at 5:13 pm

    Great that makes me want the surgery even more not!!

  162. Leeon 15 Apr 2013 at 6:32 pm

    I have been suffering with this for four years. I’ve had 10 operations and ssoo to have my 11th. Nothing has worked. Drainage, Pumps and Skin grafts have all failed. I sympathise totally with you! This has ruined my life!

  163. Brandonon 12 Jun 2013 at 2:22 pm

    Hi everyone! I am 20 years old and had the surgery done on February 28th 2013. I had it closed up with glue and dissolving stitches. My doctor told me I would be out for a month on average. The first 2 weeks were going very well. Then I noticed a little blood when I went to the bathroom went to my doctor for a follow-up appointmentd he said it opend a bit. No big deal. That night I went home and woke up in the middle of the night and the whole thing had opened just about. So I went to see the doctor and he gave me a name to go see a wound care specialist. It has now been 3 and a half months and I’m starting to go crazy. Definitely have made some improvements but it’s still open a bit! It’s been so difficult on my social life and it’s nice to talk with other people that are going through the same thing. This has been quite the awful experience and I just hope at some point soon this thing will close up. If anyone has questions or feedback feel free to share your experiences :) thanks

  164. Cathyon 12 Jun 2013 at 2:45 pm

    Hello..same thing happened to me. You may want to ask your wound care specialist about a cream called “Silver Sulfadiazine” cream. This has always helped my stubborn wounds to close. Hope it closes soon…could take up to a year, so hang in there.

  165. taraon 12 Jun 2013 at 3:07 pm

    Hey, i had surgery on mine for the second time back in january. The surgeon suggested that i give up smoking, so i did. 5 months later it is back. I had it drained at the doctors which was pretty painful but i just didn’t want to wait for surgery. Has anyone ever had one that has never come back? Or do we have it reoccurring for life? I find it pretty humiliating purely because of its placement. I just want it gone and to stay gone!

  166. Kirstyon 12 Jun 2013 at 3:53 pm

    When I had my first and second surgery it opened again and wudnt heal and wud leak stuff all the time so much that I had to have swab patched in my underwear to protect my clothing. I then have just recently had more surgery a big op this time a bacon cleft lift after 12 I an finally say it was worth it I had 10 weeks off work as the bottom opened once the drain was removed and then I contracted ecoli and steph infection in he wound and was on constant antibiotics for 7 weeks it was the worse one ever but now 12 weeks on the wound is closed and the scar is not that big the scar tissue that is now there where they removed the infected tissue and pulled new tissue in to fill the gap gives me pain occasionally pushing on nerves and making pain down my hip but my life is 1000% times better now

  167. Kirstyon 12 Jun 2013 at 3:57 pm

    My friends partner had it drained n left to b packed 7 years ago n his never came back I think it’s just depends on individuals.. I had that for. And then went on to havin the bascom cleft lift done x

  168. Brandonon 12 Jun 2013 at 5:27 pm

    Thanks guys for the feedback! I’ll have to look into that cream Cathy. I also have given up smoking as of recent to hopefully help. But this really could take a year!!? I have to get back to work and it’s not a job I can do with this. I have heard that cleft lift procedure is pretty effective and I to want this thing to never ever come back. It’s been really difficult and stressful:(

  169. Cathyon 12 Jun 2013 at 6:00 pm

    I hope it works for you, I know how hard it is, yes, do try the cleft lift if you like, or try the cream first…In addition to my pilondial cyst, I have a condition called “Hidradenitis Supperativa” so I had 36 stitches and a z-flap…of those open wounds the one that is open is just inches from my rectum, which is probably the reason for it not healing….Also, I find it to be greatly soothing to swim in the ocean….it really helps my wounds. Hope something works for you…take care. :)

  170. Brandonon 12 Jun 2013 at 6:16 pm

    Very interesting. Thanks much. My opening is right in the mid section of the incision So I’m going to give that cream a try. Thanks once more for the help. Have a good one!

  171. Juanon 17 Jun 2013 at 3:23 pm

    Hello – has anybody ever had this problem. I had an open excision surgery on the 5th Feb 2013. Was in hospital for 2 and half days and it still hasn’t closed and it’s been 4 months already. It’s not bleeding but still leaks.

  172. Kirstyon 17 Jun 2013 at 4:13 pm

    Mine was open after surgery or year before they decided to do a bascom cleft lift but it did still full up n explode once a month

  173. Cathyon 17 Jun 2013 at 4:53 pm

    Yes. Juan…I have a condition called “Hidradenitis Supperativa” so Mine drains constantly, regardless of surgery. Right now I have two of the same surgery he did that leaks and bleeds…the rest healed over nicely.

  174. pepsion 04 Aug 2013 at 12:41 am

    Hi I am 28 yrs okd and I had pilonidal for more then ten n years , I just went to surgery on aug 1, 2013. I will never thought I will do this but I was so sick of it. So far the pain is not that bad and will try to update yya whenbi am fully recover. Good lucky to all!!!!

  175. Sharonon 25 Aug 2013 at 9:47 pm

    Hi everyone… I had my first surgery w closed incision when I was 19. I am now 60 and know without a doubt that I have a pilonidol abcess. I really hadn’t had any issues for all those years, until a small lump showed up on my tailbone about six months ago and then all of a sudden, flared up into the ugly beast it is. I am making an appt tomorrow, but was wondering if anyone knows anything about a procedure called pit picking? This disease never truly goes away, and now I am scared to death after reading horror after horror about surgeries gone bad and wounds that won’t heal. The only thing that makes me feel better is that you all are so kind with your support of each other. Thanks for any advice you can give. Prayers for fast healing!

  176. Cathyon 26 Aug 2013 at 5:22 am

    Hi there Sharon…that is SOOO Frustrating. I can’t imagine it returning after all those Years!!! I am one of those horror stories, mine was very complicated and he needed to do a z-flap on me, because it extended beyond my tailbone. which required 36 stitches…yet there is 2 spots that refuse to heal, even with Silver Sulfadiazine Cream. You can learn all about Pit Picking, here:
    Best of luck to you!! Hope this helps.

  177. Chadon 26 Aug 2013 at 6:47 pm

    Hello all,

    It’s been a while since my surgery. Everything is doing good so far. I also had my spinal fusion in January. That was way more intense than the Pilonidal Removal.

    Yes you do have hair back there, even if it’s peach fuzz. All it takes is one little hair to create the cyst and whammo. I’m still not sure how we end up the Pilonidal Disease. Maybe we are born with it. Either way it’s a pain, am I right??? ha!

    Sharon, one thing that comforted me was doing homework on the surgeon I used. Don’t be afraid to ask him how many complications he’s had with Pilonidal removal. If any, ask how he dealt with them and if successful. Then you can go online and check his medical history. Like malpractice suits. I discovered mine did and l did a little more digging to find out why. Come to find out, he couldn’t save an ER patient. It was an issue that was out of his hands and the family was being sue happy.

    If in fact you find something like that on your surgeon, be sure to find out exactly what is going on. We do live in a sue happy society.

    Also, a lot of the healing part is on us. I can’t stress it enough that you really need to have some help. They sent me home with IODINE and my wife applied it religiously. She also changed bandages often. The most difficult is being still. Being stuck in bed for 3 weeks sucked, but the less you move around, the better you give that area a chance to heal.

    If you don’t take vitamins, I’d say do that too. Start them asap. That should help your body fight off any infection. Your doctor may prescribe antibiotics. That probably depends on your health history.

    All the best to everyone.

  178. stephon 21 Sep 2013 at 3:02 pm

    Hello. Im 20 years old and ive had this pilonidal cyst for 3 years, although I was told I was born with it.
    My first flare up was when I was 17. It was excruciating!! And I left it until it exploded & was a big mess. The dr put me on antibiotics and it healed up on its own and didnt come back for two years. When I was 19 I got some flare-ups so I got more antibiotics but it wasnt going away. So now im 20 years old & yesterday I had surgery. 4 inch scar with stitches directly on my tailbone. I had it under general anesthetic. I was given morphine after in the hospital and was sent home the same day. Today, im in a lot of pain so ive been taking Tramadol. Ive changed the dressing and im trying to lay down and relax so I dont burst open my stitches. I really hope this thing never comes back. Embarrasing for a 20yo girl lol. ITs good to know im not alone though. Hopefully you’ll all recover fully at some point <3

  179. #Jonnaon 27 Sep 2013 at 1:07 am

    I just had surgery yesterday for the 2nd time. My 1st was 10 yrs ago, 5 inches deep,and the size of a golf ball. I was awake for that one. Was very painful. This time I was put to sleep & am thankful. I am not sure why I have a tube sticking out this time. Last time it was packed & had to be washed out daily. & repacked. Dr. says he will take the tube out on Monday. Am confused why it was done different.

  180. Alexandra Brayon 07 Oct 2013 at 4:06 pm

    Hello.. I am a 22 year old female. Last year on the 4 of July I had pain in my tail bone. I thought I broke it or possibly bruised it. I couldn’t lay down, sit, stand anything. I ended up going to the Er and was told it was PC. They numbed it and drained it ( worst then child birth in my opinion and I have 2 boys)I THOUGHT all was well until a couple of weeks ago I sat down and felt some discomfort. I went to my GPCand he referred me to c specialist. I went in last and low and behold the thing was back. I had made the mistake of looking at surgeries on the internet and scared myself so when the surgeon told me I had to get surgery I immediately burst into tears cuz I don’t want a huge open wound!! I have a 3 year old anda 5 month old I can’t take care of them and all this! I have surgery on the 22, it’s an out patient thing where they put me out and then stitch me up. I am scared s***less that it’s going to come back cuz most websites are saying most closed wounds come back. Has anyone had this happen to them with a closed wound?? I’m freaking out over here. I just want to be better!!

  181. Cathyon 07 Oct 2013 at 5:04 pm

    Hi Love…don’t worry too much. I am a classic worry-wart myself, hate doctors, hospitals, general anesthesia, etc etc. And I managed just fine. I will tell you, I was SO Scared to sit on the toilet and go to the bathroom. Mine was worse than yours…I had a z-flap and 32 stitches. They were dissolvable inside, and had real stitches outside….ugh. It took me up to 2 months to heal for the most part…but I am sure yours will be of luck to you and I hope all goes well…mine hasn’t come back yet…and it’s been 3 years now.

  182. Alexandra Brayon 17 Oct 2013 at 12:54 am

    Cathy thank you so much for your insight. I don’t know if I should leave it open or stitch it up. My surgeon gave me both options. I would rather have it stitched cuz gauze changing seems so painful but Idk if that’s the best option… If I get an infection I would have to reopen it anyways. What would you choose if you had to choose closing it or leaving it open?

  183. Cathyon 17 Oct 2013 at 4:00 am

    Hi Alexandra. I had it done both ways….Didn’t much care for the open option…never had a problem with the closed, except once the stitches popped and left me with a smaller open wound…it’s hard to know if you will get an infection or not, but I was safe putting neosporin on my stitches to prevent infection…..if you decide to leave it open, see if he can give you a cream called “Silver Sulfadiazine Cream”…it really helps to close the wound in time. It’s a hard decision to make…whatever you choose I hope you heal very quickly. Good Luck and keep in touch with us.

  184. Marieeeeon 19 Oct 2013 at 3:16 pm

    Hello, I’m chelsea I’ve had my first cyst about 6-8 years ago . It was pretty painful I was put on antibotics and bout a week other drained and I was good as new to school..Then last hear around this exact time it came back o ignored it because it had comes back but went away wasn’t painful as much so never paid attention. Well last year it came back stronger and bigger. I had it for about 2-3 months before it got so big I couldn’t walk or sit at all.I saw a new doctor and I wanted him to cut me right then and there it was embedding thought everybody working there knew I was in pain..well he prescribed me 3 prescriptions… I don’t remember what they were but it was a waste of $175 …they worked well but made me dizzy,loss of appetite, sick to my stomach,constant diahreea. I really hated when people would tell me twoo eat it was annoying but I could I would try but couldn’t I would puke it up…The next night it popped and drained it smelled so bad it woke me up from my sleep. I was so relieved happy but now it’s back 4 days ago I noticed that it looked like it was fully gone but I spoke report soon it’s back but luckily I can walk. It hurts to sit it’s not as big as last years but it painful… My left leg is starting twoo give out I haven’t ran since 2 days ago I’m scared that if I do it was rub against and flare up more..I feel like my left butt cheek is bruised but see no signs of bruising …I don’t wanna get surgery but I can’t live with it any longer… I hope it popes by itself because it was leaky 2 days ago but stopped… I’m in college and I don’t want to miss… Any options or advice? THANK YOU ?

  185. Jayhawkon 19 Nov 2013 at 8:37 pm

    Steve, don’t know if you still frequent this site, but wondering if you could offer insight on my situation. I had a pilonidal cyst lanced in the spring of 09 after I had been riding on a bus for 9 hours straight. It started out like a pimple and grew to a pretty big abscess in a matter of days. Well, it’s been about 4.5 years and I haven’t needed to be lanced again. I do have a scar and a hole where the old abscess was, but it doesn’t really bother me now that I’m not paranoid about it returning anymore. However, just today I noticed a red swelling like a big zit before it gets a white head just to the right of the tailbone on more of the butt cheek area than the middle, and I was wondering if it’s possible that it’s coming back. I guess my question is if pilonidal cysts can happen anywhere on the rear end, or if it always happens on the spine. Thanks

  186. Steveon 02 Dec 2013 at 6:06 am

    Sorry for the delay in seeing your comment. I have always heard of them starting around the tailbone, but I guess where they reach the surface is up to them. What you have doesn’t have to be a pilonidal, it could be a pimple or another type of cyst/abscess. If it’s persisting and not going away, I’d have a doctor check it out. That’s going to be your best option. I hope that helps.

  187. Cathyon 02 Dec 2013 at 6:08 am

    I don’t know if steve is still around but I can answer that question for you. Yes, you can. In fact I have had mine come and go since the age of 10, and did nothing about it until I hit 45 years old…When that happened I had more than 4 cysts to deal with and required a z-flap surgery to take care of it. One was to the right side, One was to the left, in addition to the regular pilondial cyst and one was inches from my rectum. So yes, they can appear other places besides your tail bone. You may want to look up the term “Hidradenitis Supperativa” and see if this describes you. I have had it for 35 years now and I don’t wish it on anyone. See your doctor before it’s too late and you need complicated surgery. I wish I hadn’t waited but you know as a kid, no 10 year old is going to show a doctor her A**. Good Luck to you. But don’t let it get worse.

  188. Kylieon 02 Mar 2014 at 7:28 am

    Hi I’m 31 just had surgery for abscess drained pilau dial sinus, came up Monday as pimple throbbing pain now us Sunday still in hospital
    So much pain couldn’t walk lay stand or lay on back or sit or drive still managed to get kids easy for school do after school activities and work not very well with poor concentration
    As I work at drs cause I was in so much they looked at he rushed me for urgent ultrasound to confirm find infringe cause I was so tender, did state on report Sebastious cyst he put me on antibiotics and if gets worse to review it
    Thursday came went to work saw dr again it had increased in size and heat and pain had no sleep by this time can’t walk without crying
    Examined not well way to tender
    Called specialist who fitted me in straight away
    He looked and said too tender for him examine
    He was thinking abscess cellulitis to admit me for observation and pain relief
    That was Thursday
    Gradually got worse that night none examined it till dr did rounds late had changed small lump in coccyx area but red around area still painfull 9/10 he said get pain relief kept getting worse he would review me Friday
    So all day got worse
    Cried all day could feel feel it like bubbling bubbling expanding now it was hard and spread all the way down my bum cheeks from coccyx spread 5cm either side each cheek I could feel the heat through my pants
    Once my dr looked at it he said book theatre need to operate now there’s an opening and he can see the infection building now cause the staff drew to see how much it had spread in 9 hrs 5 cm again and lumpier but cause I was having general anaesthesia I had dinner this was at 10pm he wanted to do at 12pm
    So had to wait all night
    Cried all night at this stage was getting worse hotter spreading bubbling more could feel it
    Was notified theatres hadn’t been booked didn’t know when I’d go to theatre plus no one booked anaesthesia dr finally got taken st 3pm had got worse all day
    Once done was told it was all drained pus so much came out very happy with surgery the relief from the pressure still pain though
    So wound is left open packed been taking salt baths clean wound packing been taken out redressed now on oral antibiotics and pain relief
    Now thus afternoon feel redness swollen again hot above where it was operated on too tender for him to touch he said he will look tomorrow before discharging if I need to stay longer that’s what’s got to happen,
    Can this reoccur so quickly???,

  189. Cathyon 03 Mar 2014 at 6:19 am

    I am so sorry for your incredible ordeal and pain. No…it shouldn’t happen that quickly…not at all. He may need to put you back on a stronger antibiotic…hopefully through your IV and not just in pill form. I hope all turns out well for you…you may need to stay longer…best to stay longer than go home and suffer.

  190. Willon 06 Mar 2014 at 11:41 pm

    I am male, 16 years old. I’ve had a lump with drainage of yellow substance and occasionally blood.I’m pretty sure its a PC, but I have no back pain, fever, soreness, etc. The only symptom that seems to be correct is pus drainage. I’ve had it for about two weeks now, but it has not caused any pain. Would it be okay to just live with it? Because I don’t want any surgery or doesn’t seem to be that serious. If so, could you give me some at home tips to help this. Please, and thanks.

  191. Cathyon 07 Mar 2014 at 6:53 am

    Not a good idea to just “Live with” as I learned the hard way. I have had the same issue on and off since the age of 10. I finally had surgery at the age of 45 and I ended up with 32 stitches. It spread to multiple places including just inches from my rectum. Now I am having a difficult time closing it, and need to see a plastic surgeon. My advise…Get it out of the way, and get it fixed while it’s still small enough.

  192. Willon 07 Mar 2014 at 7:25 am

    Thanks so much. I think I’ll wait until summer and then get it removed. I’m busy with sports and school at the moment.

  193. Kirstyon 07 Mar 2014 at 2:54 pm

    After 3 ops mine has come bk but further down as it can’t grow back on the scar tissue. I am 6 n half months pregnant and I think this is making it come back with the strain of a growing baby pushing on it. The doctors put me on 2 different antibiotics at the same time they cleared it. But 3 weeks later I can feel another one coming :( I am really worried that giving birth will open up my scar or cause another big one :(

  194. Willon 07 Mar 2014 at 9:06 pm

    Is a PC harmful to you? And how much pain is the operations?

  195. Cathyon 07 Mar 2014 at 10:05 pm

    It could be very harmful, especially if it gets infected. The surgery is less painful than the PC itself. I felt much better after my surgery than I did without it. :)

  196. Willon 08 Mar 2014 at 10:56 am

    How do you know if it’s infected?

  197. Cathyon 08 Mar 2014 at 4:26 pm

    Well…you will have a fever, chills, it will be red and HOT to the touch, swollen, etc.etc. You will be in a lot of pain. Hope that helps and you don’t feel that way yet.

  198. missyon 02 Apr 2014 at 5:41 am

    My son 19, had the surgery 8 weeks ago. He was healing so nice. Then a few days ago I noticed when I cleaned him with saline it had bad odor, sure enough last night he said he felt pain again. I just cleaned the wound with saline and it was oozing. I put slight pressure on both sides and it just kept coming out….very frustrating. My son is depressed. I am going to call the surgeon in the morning but I am sure it is back. Anyone else have this experience?

  199. Cathyon 02 Apr 2014 at 2:40 pm

    He sounds like what I have…did his doctor mention a condition called “Hidradenitis Supperativa”. Very common…mine “leaks” and drains every day. Even with surgery. Ask the surgeon about it. It may not be infected at all, but it may be that he has HS.

  200. Jasikaon 04 Apr 2014 at 2:00 pm

    I have Hidradentitis Supporativa, so two years ago when this first happened I thought that was flaring up again. I couldn’t sit without screaming obscenities. I was given pain meds and antibiotics and sent on my way. It opened the very next morning. The foul odor woke me and I knew it wasn’t HS. It happened again six months later. This time I waited 1.5 weeks and finally not being able to crawl, I went it. This is where I first heard the word “Pilonidal” and was told that my Sacral Dimple might have contributed to this. It was lanced and drained. The worst part was packing. I had it flare up once more since then and refused to have it lanced due to packing. Finally went in to see a surgeon yesterday and was told I have to have an open wound surgery. My question is, will the packing of this wound hurt the same as the infected abscess packing?

  201. Cathyon 04 Apr 2014 at 3:55 pm

    Well…it’s no picnic in the park. For one thing, to get the packing out easier, get in the shower and let the hot water run onto it. You can also take a wash cloth and gently “massage” it out of place with the hot water…it takes a while depends on how they pack it. My husband packed my wounds and he is gentle. I can’t say much for the surgeon though. Pain meds will help you. Take them an hour or 45 minutes before you have to pack or remove them, and it will go easier on you. Best of Luck with your surgery. I hope it heals quickly. Mine was all sewn together but I am still left with an open wound due to a very difficult z-flap. Take Care.

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